Recent content by suziQ

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    Radiation for saliva

    Thanks Nikki, seems like every treatment for saliva has its drawbacks. think o would rather have a c;oth im my mouth all the time than deal with yhis thick sticky stuff
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    Radiation for saliva

    I had two sets of Botox for my uncontollabe Saliva. It gave me thick sticky saliva. has anybody done radiation for saliva? if so would you recommend it?
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    progression

    working on finding someone to help with my dog. He actually wears a no pull harness! still looses his mind when he sees another dog Breathing is okay. I use a bipap at night, weight is stable. i lost some but am trying to gain it back bot i can see that i have lost muscle Most of my food...
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    progression

    i feel like i am progressing fast 55 and was diagnosed with bulbar onset in october At that time everyone could understand me and i could eat most foods February i went to Arizona,,was still eating but slower and less people could understand me, did a lot of walking and hiking with no...
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    Looks like my only option for this saliva problem is Botox. Pros/cons from someone who knows?

    got Botox injections 8 days ago so far no changes good or bad
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    atropine drops

    i use atropine drops for excess saliva. I put the drops under my tongue . Sometimes the work and sometimes they don't. Am i missing something?
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hello Spent 10 days in Georgia visiting friends. I used to live there so i saw a bunch of old coworkers, it was nice but also a bit frustrating because i mostly just listened to the group conversations as i could not get a word in with my app. Had a fall on some steps in a garden we were...
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    saliva

    never mind i found them. Searched all day yesterday
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    saliva

    I use atropine drops for saliva. i am traveling and my bottle seems to have grown legs and walked away. Is there anything over the counter that helps with saliva?
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    not being able to speak clearly has been interesting. Yesterday i went for an oil change and they though i could not hear so they bent over backwards to make sure i understood them. When i was able to communicate that i can hear they were so apologetic, they though they had offended me. They...
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    speech

    i got spiral bound index cards and am writing things i need to say on them.
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    speech

    oxymoron love that idea might work on making some cards.
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    speech

    so i can still talk but only a few friends i talk to regularly can understand me. I live alone in an apartment and have a dog. i run into other dog owners and sometimes the speak. I have an text to speech app but usually they are not close enough for me to use it (because of dogs) i try...
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    64 here in Michigan feels like spring but not trusting it yet. I like the cold but some days have been a bit bitter so i am enjoying this. I am all for the sunshine protection act don't care if we stay on daylight or standard just so we don't flip flop
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    Bipap Question

    howdoug what chin strap are you using, haven't found one that works for me yet
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