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  • Hi SUzannah, you posted on my thread a while ago and tried to reply but the thread is closed. Interested to hear that we have the same symptoms but with no diagnosis. How are you doing? Sorry I have taken so long to get in touch, have a lot on my mind.
    Dear Suzannah, I just wanted to let you know that I read your meaningful post from today under "Re Dihalers". I posted there back to you. Sincerely, Laura.
    Hi there Suzannah,
    I've been thinking about you...
    Hope you're having a great weekend!
    Decisions are the worst, but I hope you are making progress in that regard.
    God bless, Janelle x
    I Suzannah, on me they did blood draw, a spinal tap, the breathing stuff,a bunch of occupational and physical tests to measure where I stood, and the standard neurological prodding and poking. They did offer a neuropsych assessment if you felt there was necessary.

    Yes Sandy well with me. It's a good idea to have your mother go with you.

    Yes I was military and the VA offers many many benefits. When video appointment? If you don't have a life insurance now might be a good time to get it before a diagnosis. Insurance can be tricky… Is it private insurance costs are company? Hang in there and hopefully Dr. Appel will give you a thumbs down :)
    I Suzannah– – gladly give you as much information about Houston Methodist as I can. Pardon me in advance for any typing problems. My hands are no longer working very well and so I'm using a speech to text software and I seem to make a lot of mistakes :).

    the ALS clinic at Houston Methodist is considered one of the foremost in the world. Dr. Stanley Appel has been researching and managing ALS for over 35 years. He has put together a team of neurologists, physical therapist, occupational therapist, pulmonologist, and a complete collection of the eight primary discipline needed to support and validate ALS.

    My biggest complaint is I hate having my blood drawn :).

    Let me know if you have any specific questions and I'll do my best to answer them.

    Kind regards,

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