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  • Hi Susan
    Thank you for your thoughtful advice. Since your last message I have progressed , I now have a feeding tube and weigh 94 pds (yikes)! I can no longer swallow and my speech is very hard to understand. The good thing is I am eating healthier than ever before. My two older daughters blend up Veges, fruit,beans, eggs etc...in the vita mix. My skin looks great! Lol!
    And how are you doing ?

    all kinds of veges, fruits, eggs, beans etc..in our vita mix. My skin looks great! Lol!
    Susie Pooh, Have a GREAT time! Good weather, good food, good time had by all.
    Susan, do you have a card that you can give to people in case of an emergency? Like "I cannot speak because I have ALS" type of thing... (I'm not a drunk!) :)

    I also don't go out by myself unless I'm just going to the drivethru and I can leave my scooter at home. Otherwise, one of the kids comes with me. And frankly, I get so tired of putting the darn scooter in and out of the car, I don't want to go out anyway!

    Have a WONDERFUL time on your trip!!!!
    Thank you!! That just reminded me of his baptismal services :) it was done in Italian. I didn't understand a word but it sounded beautiful. my only nephew, if anything happens to him I will be devastated :(
    Good morning, Susan!
    So happy to read that 2yrs after first signs you are still able drive and walk. It is a bitter sweet happiness, sad that you have this diagnosis but yet happy for your ability to still function. Although I do not know you, my heart feels pain for all on here. I take it from your post you have not lost all of your speech? He is slurred and nasal...but the main thing is it seems so strained. Hopefully you will continue on a slow progression.
    Hi, Susan!! My fiance is in the process of seeing a Neuro for some type of MND. It started in his speech and would love to hear your story, if you have time. Thank you and many blessings your way!
    Hi Susan! How are ya? It is sooooo windy here, and cold :( I don't like it when I can't take the kids out to play :(
    YES! I am so glad she is on FB too :) Her twins are so cute. I wish I was closer I would visit her if she wanted company. How is FL today?? I am ready for it to either snow or be warm, one or the other please.
    Hi Susie Pooh, thinking of you as you deal with your MIL's passing, sending you a hug... love you lots girl, and it's been a tough week for your family.
    Hi Susan..I forget to check messages...sorry. I had a wonderful Chrisrmas filled with love and laughter. Last of family left yesterday and I was exhausted. Taking it easy today. happy new year! Becky
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