Recent content by sunewun

  1. sunewun

    Just denied social security benefits+

    Self employed couples can split fica wages between the two even if the check is payable to one.
  2. sunewun

    Classic Bi-Pap vs Trilogy 100

    If you are used to a nasal mask but need full face, I have been happy with the"Hybrid"mask. It is a nasal but also covers the mouth. It comes with 3 different sizes all in one pack so make sure that is what you get. The Liberty mask is similar, comes with 1 size. You can see them at cpap dot com.
  3. sunewun

    Do you let someone give up without a fight?

    Atsugi, My heart was with you both as I followed your story. You were a blessing for your wife and a comfort to her. May there be peace in your heart for a love well done.
  4. sunewun

    Hi, I haven't been on the forum in a while. So happy to hear that your Dad is doing well. It...

    Hi, I haven't been on the forum in a while. So happy to hear that your Dad is doing well. It is so sad to see our friends and family leave us. I can't walk at all any more, arms a little weak but mostly ok. Some trouble with mucous. Take care.
  5. sunewun

    Elaine, is every thing ok with you? Haven't seen you on the other forums recently?

    Elaine, is every thing ok with you? Haven't seen you on the other forums recently?
  6. sunewun

    Being shut out

    Just tell him you took him "for better or worse, in sickness and in health" so he can just forget about it being any other way. Strength to you both. It will not be easy but I am sure you know that.
  7. sunewun

    Hi Kim, Good to hear from you. I hope you had a good day yesterday. You have had so many...

    Hi Kim, Good to hear from you. I hope you had a good day yesterday. You have had so many things going wrong this year it has maybe been a tough one for you. As for me it has been a steady slide downhill. Both my legs are about useless. Standing for even a minute is almost impossible...
  8. sunewun

    My Answers

    So funny and oh so true!
  9. sunewun

    Trilogy vs. Avaps?

    She will qualify with ALS diagnosis but her fvc scores have to be low enough to qualify. That is usually near 50. The dr. ordered bipap st for me but as my breathing goes down he may switch me to Trilogy which is a more sophisticated machine or he may leave me on bipap (also known as vpap...
  10. sunewun

    Hi, sorry I have not been on the forum much lately. I am slowly progressing. I am not able to...

    Hi, sorry I have not been on the forum much lately. I am slowly progressing. I am not able to take a step any more without my husband helping to hold me up. My arms have just started to weaken a little but my breathing is still pretty good. Hope your dad is doing well. I know how hard it is...
  11. sunewun

    Any trucker out there?

    I am just curious. How many of you were former truckers? I thought that if there were a large group that we might try to get the trucking companies to make donations to curing ALS or at least help some out.
  12. sunewun

    Does ALS ramp up your sympathetic nervous system ie; fight or flight?

    I jump out of my skin with every loud noise or unexpected noise. Aghhhhhh
  13. sunewun

    Could it be ALS in my healthy 41 yo husband?

    Vanderbilt is the place to go. They have good neurologists and an als clinic so they know the tests. Sometimes it take a while to determine. Hopefully they will find something else going on rather than als.
  14. sunewun

    It saddens my heart to know that Joe has gone on, though to a better place. He was an...

    It saddens my heart to know that Joe has gone on, though to a better place. He was an inspiration in my life and I wish his family love and peace.
  15. sunewun

    Have To Leave Forum

    I wish you could reassure your husband that there must be thousands of men called Rusty in Oregon and basically the only people that look at this site are people with ALS , caretakers and some people that are afraid they might have it. Go back in and open a new account with a different name...
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