Recent content by sunandsea

I have three different hygiene slings that I would like to donate if anyone is in need of one. I can send specifics - brand names and sizes - if interested. It took some time for us to find slings that worked well for us and I would like to just pass them on. I have two that are new and one that...

I'm sitting here and trying to catch up on so many posts and so many stories. I've tried to do this a few times and it's difficult to keep reading. Maybe it's the memories and the reminders of what life was like. My heart goes out to all of you dealing with the disease, either as cals or pals...

Sooner, I understand completely what you are saying and don't know how to navigate the days that aren't planned around work. I'm sorry - I haven't checked in much and haven't posted. I hope they days are getting easier for you. It is one foot in front of the other, isn't it?

It's been three months and the grief is still very raw. It seems to be getting worse. I'll try to believe it will get better. Thanks for the posts. I haven't checked in for awhile - couldn't - and this was encouraging to read tonight. Judy

Thank you, everyone. Judy

To all who have posted here - my thoughts are with you. I lost my PALS just a month ago and each day seems worse - things aren't getting easier or better, but worse as reality sets in more and more. I miss him so very much. I didn't want regrets and still there are some - what I should have...

Jlynn, I'm so sorry and I understand. I agree - I never knew it would be this hard or hurt this much. I am clinging to the promise that it will get better. I hope that you soon feel peace and can remember good times with your brother. He was so, so fortunate to have your love and care and I'm...

Thank you, all. It's been a difficult couple of weeks, as I know many of you understand, and I still can't believe it - that he is gone. When do you start believing it? I used to say that I didn't want our time together to end but I didn't want it to get more difficult for H to carry on. So...

My PALS, H (Harry), passed away very early Sunday morning, October 1st. His children and I were with him and we were able to keep him comfortable until the end. I can't write details - I'm struggling to get this out. My heart is so heavy and I can't believe it's over. Hospice had just told us...

Becky - Amazing pictures and amazing trip. Glad it was such a success. Hope you get some more rest. : )

Sooner, I'm sorry to hear about all that you have had going on and the changes. I'm just catching up and glad to hear you are able to take some time to focus on things at home and you are getting help. You've had so much to deal with, you need some quieter moments to adjust to all the changes...

Sue, Trying to catch up on all you have going on. I'm so sorry to hear of your daughter's struggles. We have a son finishing up grad school and it's been hard the past three years. You've been dealing with all of this so much longer. I hope she finds the new prescription strength helpful. Have a...

Thank you, all, for the responses and input. Buckhorn, that was amazing and helpful. Thanks so much! I'm not sure if it is unusual to not have a pulmonologist at clinic. We had always had one until recently. I'm falling asleep in my chair here so will need to write more later. It's been a sad...

Sitting here and thinking about how much has changed in the last couple of weeks. Rereading old posts on the oxygen question and learning a lot. H is comfortable but sleeping a lot and not eating as much as his normal. Is this the beginning of the end? I often feel like I'm constantly looking...

Thanks Tillie. And Chally and 4tloml. I do have a question for any/all - hospice is recommending oxygen for my husband to treat the low levels he is showing. Is it ever a recommended course of treatment with als? Our resp therapist came this past week and adjusted the trilogy and that helped...