My journey really started about two and a half years ago, when I finally went to the Dr at my wifes request. My left leg had atrophy for at least a year before I went to the Dr. I was diagnosed with ALS on April 29th, 2008 by general neuro. Six months later at the MDA clinic I saw two different ALS specialist, both confirmed not ALS. One thought maybe adult onset SMA or maybe an unusual variety of CMT. The older more experienced Dr said Monomelic Amyotrophy. I do have a family history of something neurological. My father and grandfather both have/had something. Grandfather passed away at 89 and my Father is now 76 and almost crippled. He doesn't care to go to the Dr to find out. I hope you find the answers you seek.