Recent content by SulleyAnneC

Thank you so much for your reply, Laurie! The equipment was different this time (same doctor, different hospital) - he saw me in private practice first and then at the hospital becase he wanted to perform the stress test following a low MVV value last time. The way he explained this to me...

Affected, Thank you so much for your reply. I have an upcoming appointment with a neuromuscular specialist and I'm terrified. What Im trying to do beforehand is to have an educated opinion, because appointments are usually very brief and I don't fully know or understand all terms so I often go...

Hi all. My previous post: Hoarse Voice and reduced MVV (50%) is not opened for replies. I wanted to give an update on my situation, and ask for advice. Your honest opinion. So as I said I was scheduled for a neurological visit in september, but I got scared and canceled it, now it's rescheduled...

Thanks. Not until mid September, unless I can find another doctor available. I updated the neuro doctor (the one who visited me in November) via email with my spirometry results and the new symptoms. He said my position definitely needs to be updated with a new physical examination. Will try and...

Thank you all so much for your replies. What is concerning to me - what I don’t understand - is that the pulmonologist made it very clear that my MVV result is not COVID related but it’s strictly muscular or neuromuscular. (I had to ask him again via email because I was not sure I understood...

Thank you. I will do that. So MVV is not only neuromuscular? I have a hard time understanding the meaning of this value. Checking Dr. Google is not helpful in this case

Hi all, I wrote a post a while ago describing my issues that started last November. To summarize I had fatigue, low raspy voice and pain in the limbs ad well as clinical weakness in the left arm. 
I had and still have cramps every night, particularly on the legs. 
The weakness in my left arm...

Hi all, Thank you for taking the time to read my post, I hope this is the right section for it. Please excuse my naïveté and sorry if I sound alarmed, I know I speak from a place of fear and I’m still learning about all this. My question is should I be testing? My dad was diagnosed (spinal...

Thank you both so much for the explanation. Yes I had my retina checked a few months back and there was no concern there. Will be mentioning at my next neuro visit for sure. Yes, I will be updating with news as soon as I know something

Hi all, I just wanted to update on my situation, I decided I’m going to see a neurologist again, after falling (again) due to not having balance while walking. I have a question after reading some pages on this forum, I noticed many people quote eye floaters as neurological symptoms, I never...

Thank you for your clear response. Yes I had needles inserted in 3 areas, first with relaxed muscles and then with a little tension. I don’t know if they did a nerve conduction study but given the report I think not? I will ask my doctor about it next time, unfortunately he could not see me...

Thank you very much. No, unfortunately this is all there is to it. Just these 4 pages. Is it not a complete EMG? Would you advise me to ask a neurologist to run one? My fear is that the hernia is not a cause of the symptoms but a consequence of the disease. (more or less like my dad who had...

Thank you Laurie, thank you for your kindness. Yes, I have been told that familial ALS usually starts at the same age, although that’s not what that doctor meant (but that’s another story). I’m attaching my EMG results. Unfortunately the brief report at page 3 is written in Italian but I’m...