Recent content by Sue Drumm

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    PEG tube question for women

    Hi, I was diagnosed with Bulbar Onset about 7 months ago. I am still able to eat some things, but they recommended that I get the PEG now, while I’m still fairly fit. My problem is that they situated under my breast, which is large. When I sit, my breast covers it, and it gets irritated. I...
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    Food and drinks ruining my clothing

    Thank you all very much!
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    Food and drinks ruining my clothing

    Hi! I have bulbar onset and have started to have real problems with spillage onto my clothes when I eat or drink (mostly when I drink.). Paper towels don’t cut it anymore. Does anyone know how to make or purchase a coverup or bib? Thank you!
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    How to contact 911?

    Thank you all so much! I’m very grateful for your advice. I think I’ve come to the right place! SueD
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    How to contact 911?

    Hello, this is my first post. I was diagnosed with bulbar onset ALS in February. My speech became slightly slurred about 9 months ago, and now I can can only pronounce vowels and individual letters (“A,” “B,” etc). I’m working on different ways of communicating, but one thing I haven’t figured...
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