Recent content by suchahoward

That's my concern too. I really need zooming and focusing to be easier. Thanks!

Thanks, Steve!

I'm an amateur photographer. I take photos with my iPhone because: The camera is good enough for my needs I don't want to carry around a separate camera BUT....my hands and fingers are getting weaker, making it harder to: hold the phone steady pinch and zoom accurately set the focus where I...

Awesome! Thanks! I'll be sure to try this!

Thanks Cathy. I'm trying to track down local PTs and OTs with experience with pALS.

P.S. For me, no loss of feeling, just loss of strength and mobility. I can barely move my left pinky and ring finger, and my right pinky is not far behind. Also, just in the past two weeks or so, I wake up every morning and my left pinky and ring finger are clenched and I have to use my other...

Thanks, Cathy. I of course LOVE this response!

Thanks Ben64. I did yoga for many years and miss it dearly. I had to stop when even the easiest poses caused my legs to go into cramps immediately. That said, I know there are types of body work, like certain types of massage or some other techniques, that can do the equivalent of gentle...

Thanks for the reply, Nona. Trail running is super popular here in the Pacific Northwest. I don’t have good enough knees, so I hiked the trails instead, but running looks fun. I love IPAs too. They are usually higher in alcohol than other styles, but there are more and more “session” IPAs...

Oh geez, Bill. Multiple times a night? I feel like a wuss now. I’ve had a few cramps over the past week, but most nights if I lie down and breathe and relax the fasciculations calm down after an hour or so and the danger of cramps is gone. But when those fasciculations intensify, man, I get a...

Thanks Chuck! Did/do you play dobro?! I tried learning it after I could no longer form chords on the fretboard with my left hand, but i’d never played open tunings before, and only ever faked fingerpicking before. Still, while I could no longer perform, I have been able to attend a weekly...

Wow, thanks so much Laurie for all of that incredibly helpful info. I had suspected electrolyte issues from dehydration, even though I like drinking water and typically drink plenty. But, before I was diagnosed with ALS I had several blood tests that indicated that my magnesium, potassium, etc...

Thanks, affected! That’s me with two empty halves of a coconut on a beach in Hawaii trying to communicate with aliens. 😉🤪

Woh. Thanks Kim. Fortunately, no bulbar symptoms for me yet. (I probably just jinxed myself! 🤦🏼‍♂️)

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