Recent content by stymied

Gilwest, I'm not looking for it, but I'm concerned about it. Before this I never had any health anxiety. I would probably think carpel tunnel too if it weren't for the fascics and everything else that has gone on over the last 18 months.

Thank you so much for responding. I got the little rippling fascis between the thumb and finger. They've been there since 18 months ago, maybe longer. Is that a long time? I'm so confused and paranoid. I have a neuro appointment Thursday. I don't have a good feeling. I've been twitching all...

I posted a little over a year ago due to concerns about twitching and other symptoms. I had a good clinical and a "normal" EMG back in late December of 2014. My issues started with twitching and other stuff in early September of that year. I had big plans to come here at the year and a half mark...

Ann, I'm in Somerville as well. I hope you are doing well.

Quick question: is it odd for my neuro to order an EMG if she found nothing wrong during the clinical exam. I ask because it seems like a lot of people in this forum who share similar worries have to ask for it and the neuro will say it isn't necessarry. I never mentioned the EMG. I'm just...

Poking around on the internet and and consulting Dr. Google are definitely big mistakes that I've made. It really does no good. It's the first thing I would say to somebody if they were acting like me. I think what freaks DIHALS out is stories like Steve Gleason. Obviosly, I'm not privy to every...

Wait a minute. I'm not rejecting anybody's opinions. I asked some questions and best tried to explain my symtpoms to you because I know you guys know better than I do. I read one account in these forums of a guy who was diagnosed. He said it started in his leg and that he actually climbed...

I thank you all for your responses, including the sarcastic and dismissive ones. Believe me, I've said those things to myself in the mirror, including "go away." I think what worries the DIHALS is that for every person who says that ALS doesn't present "that way", there's somebody right around...

I have also been waking up with weird feelings in my hands. Sometimes, its the rights, sometimes the left, sometimes both. It's not the "falling asleep" feeling. It's like that in feeling but I can move the fingers. It fades in a matter of seconds. That has been happening for the last month or...

Here is a timeline of what I've been experiencing. Sept 7th: moderate to severe pain and cramping in shoulders and upper back that went on for 3 or 4 days. The night of September 7th, while in bed, is when I worst noticed occasional twitching in various parts of the body -legs, back arms. The...

Nuts, you are so right about the rare presentations. In my case , I think my emotions are getting in the way logic and probability. I'm on my way to the neuro right now and I'm in a zombie state of mind. I plan to outline my symptoms later in a thread to see what people think. There are so many...

Neuro appointment today, Clearwater Al. Been up all night.

What about people who say they first noticed an odd limp? Dies that mean a muscle is only partially damaged? Seems different from foot drop which sounds like something that fits into what you're saying, Atsugi

...and many people have also written about fascics being an early symptom. Even Pete Frates mentioned noticing twitching after working out, another wrote about noticing them after getting a message. It doesn't seem like somebody could work out with paralyzed muscles, if the muscle twitching is...

There seem to be a lot of stories from people with ALS that refer to widespread twitching as an early sign but in a lot of these forums, a lot of people dismiss that as "definitely not an early sign of ALS." I find these forums both extremely helpful at times, and then extremely confusing at...