Recent content by StuartEE

  1. S

    Going through diagnosis... I need people to talk to...

    Yesterday I had my Spinal Tap. So far I have managed to ward off the dreaded headache. Besides a occasional discomfort where they took the fluid I've felt quite fine. Last night I slept well last night as I had no twitches that I could feel all night; whether its a coincidence or not I dont...
  2. S

    Going through diagnosis... I need people to talk to...

    I would like apologise to anyone I may have upset, this was not my intention. I'd like to thank everyone who has taken time to reply. Many thanks to you all, Stuart.
  3. S

    Going through diagnosis... I need people to talk to...

    @Bestfriends14 This is my coping mechanism. I like to understand what these medical terms mean. Understand how doctors are coming to their conclusions. Questioning why lack of "reinnervations" could be a good thing. My neurologist has said it is most probably MND/ALS. But that is not his...
  4. S

    Going through diagnosis... I need people to talk to...

    A question about EMG if people don't mind. I've heard the phrase denervation and reinnervations. This is my understanding. Reinnervations are near by nerves trying to reconnect to muscle fibers who's nerves have died. This is detectable in the EMG. Denervation, is the detecting the muscle...
  5. S

    Going through diagnosis... I need people to talk to...

    The physical examination I had on my first neurologist appointment, he did say I had tightness (which I presume is spasticity) in my left wrist and leg. He basically grabbed both arms by the wrist and shook them so my wrists would flop about. Is that enough for clinical diagnosis of...
  6. S

    Going through diagnosis... I need people to talk to...

    I have never mentioned MND to any doctor or neurologist. The Neurologist mentioned it to me. he said with the symptoms i described and the tests he's done, it cant be ruled out. The MRI was to check for cervical spondylosis or MS but it was clear. The Neurologist said everything else he can...
  7. S

    Going through diagnosis... I need people to talk to...

    He has noted atrophy in my left shoulder and my left leg, however no clinical weakness. I have days when my arm and leg feel a bit wobbly but then have days when they feel perfectly normal. 2 nights ago my leg was so wobbly it felt like it could give way at any moment, but the next morning, it...
  8. S

    Going through diagnosis... I need people to talk to...

    That is how I have read it. The EMG basically said I have muscle twitches. As the conclusion says "The only abnormality noted in the EMG examination is the presence of fasciculations in distal and proximal limb muscles and in cranial innervated muscles. The nerve conduction parameters...
  9. S

    Going through diagnosis... I need people to talk to...

    I have added the document which was sent to my Neurologist. It looks different to the other ones which I have seen on here.
  10. S

    Going through diagnosis... I need people to talk to...

    Are you able to explain that a little? I thought denervations are the nerves dying and reinnervations is the body trying to work around/fix the dead nerves. I though no reinnervations meant als/mnd because as the nerves died there's no attempt by the body to try and fix. I have emailed the...
  11. S

    Going through diagnosis... I need people to talk to...

    i can probably contact someone to get a copy if that. My neurologist said that when using your muscle your nerves can to repair or bridge broken nerves. I'm pretty sure he said that is not happening, because I remember thinking that must be worse. So the nerves are dying and not attempting to...
  12. S

    Going through diagnosis... I need people to talk to...

    I just got back from my neurologist. The electric shock part of the emg was fine. The needle part was detected the twitches. He also said that when nerves die you can also detect other nerves repairing themselves. Unfortunately that was absent. I'm being booked for a spinal tap to cover all...
  13. S

    Going through diagnosis... I need people to talk to...

    People who have had an EMG before. How are you feeling the day after? I'm a little sore where the needles went in but my right index finger is really twitching which it never did before.
  14. S

    Going through diagnosis... I need people to talk to...

    On my first visit, my neurologist said we can't rule out MND but we will do an MRI and a blood test to see if there's any spinal or neck damage. Which there wasn't. I had my muscle test yesterday. He gave no hints. He said he needs to analyse the data and it will be passed to my neurologist...
  15. S

    Going through diagnosis... I need people to talk to...

    A clear MRI, muscle atrophy on my left leg and arm, weak voice, swallowing issues and muscle twitching; what else it could be is dwindling. My neurologist said the most probable cause is a form of MND. Muscle conduction test today.
Back
Top