stresstothemax

Hello and welcome to the forum. Please feel free to post on the forum itself- this is just your profile page and may not get a response here. Feel free to head on over to the New Members and also the Caregivers sections. You will find everyone here very helpful and supportive.
Once again- a warm welcome. I am sorry you find yourself here, but you will definitely get the support and information you need from the other members here.

Fiona

This is my first time ever joining in a forum. I am the caregiver for my son who was dx with ALS 2014. My biggest problem is communication. He can not communicate at all and I have to go through the alphabet letter by letter and he makes a gutteral sound when I come up on the letter. I am trying to get his Tobi enabled for eye gaze but it is a process. I feel I am at the end of my rope in fact the other day I yelled at him. Afterward I cried and cried. I couldn't believe I yelled at him. I couldn't apologized enough to him. I look to God for strength and I feel that he is not listening. I look at other people who are dying or caring for the dying patient, Joey and Rory Leek, for one. She was so strong and was joyful. The info that I have looked up on line on how to cope says to find laughter, find time for yourself, etc etc. No matter how I try to find humor or lightened the situation (like MASH) I can't. So I am trying this and see where it goes.