stilljennifer

hi jeniffer,i hope your appointment went well............got some answers.
take care.caroline

Jennifer,
Is today your appointment? Let us know how it goes, I'll be thinking about you.

pheww thats a relief,i hate upsetting people and was so worried about you.
so glad your feeling better within yourself.
thankyou for your reply. i hope you get some answers on tuesday,will be thinking about you.
(((hugs)))caroline

hi jeniffer,i hope you are feeling a little better today.
i hope i did not upset you with my response to your post,believe me i would never want to do that.
we all do understand what your going through,just wanted togive you some positive advice on how to cope with your feelings.
i could easily go to that dark place but know how bad and destructive it can be.
look at my "just for a laugh" album and i guarantee you will smile.
(((hugs)))caroline

Jennifer,

By time I got to this message from you, I see you've already gotten some responses on the thread you posted... I actually am not very twitchy anyway. I do get big spasms, mostly in the side of my neck, but other than that just cramps in virtually any part of my body if I move wrong, some fascis. Probably more than I actually am aware of because most I don't feel. You have a lot more upper motor neuron manifestations than I do. I really really hope you get some answers soon! And how good that you were able to remarry. I hope he is a very good man and loves you to pieces!

hi jennifer,sorry for my late reply.
my dx is pls,onset in 99 dx in 07.
symptoms; muscles spasms,weakness,stiffness,clonus,myoclonus, balance issues,little incontinence,slight bulbar symptoms ect lol.
as for walking,i look like a spastic duck with partial paralysis in the left lower leg lol.
waddling to compensate for the spasticity has left my hip girdle weak.
but i'm still here and sort of functioning so all is good.
hope you are having a good day. take care. caroline

Thank you, Both! The first thing I did was what I've been doing, checking on both of you. I'm having a REALLY hard day today and "seeing" your friendly faces has helped cheer me. I'm going to upload a picture today (or try to). I guess I need to get real now since I'm in it for the long haul. Love to you both <3

And yes, I can read them but not respond. My best email is [email protected]

Good morning, Jennifer! Nice to have you back!

Amazingly, I can't send you a private message yet, because you're too "new" a member! I'm assuming your email allows you to read the other private messages sent to your original user name, just not respond to them. (?)

... we'll catch up later. ((hugs))