Recent content by SteveS

  1. SteveS

    Pipe Smoking ?

    Micheline was a cigarette smoker right up until 3 days before her death. I tried to convince her to quit, even went as far as quitting myself in solidarity, not to mention for my own health and longevity. (I had just found out I was type 2 diabetic) She refused and often told me it was all she...
  2. SteveS

    MichelineS, time is near --- now over

    Today we brought closure and spread Mich's ashes along the beach of the pacific ocean not far from our home where her father was spread as well. The bright light at the upper left of the photo is actually a rainbow that appeared just as we started. Conicidence? No rain but incredible fog. Her...
  3. michsmall.jpg

    michsmall.jpg

  4. SteveS

    ALS and Obesity

    When Micheline was first diagnosed she was very over weight. This caused a problem for those of us that had to transfer her around because of her limb onset and her legs going first. By the time we had to worry about bed sores etc she had already lost a lot of weight due to lack of appetite etc...
  5. SteveS

    MichelineS, time is near --- now over

    Micheline passed away this morning at 7:40am. I went in at 6am this morning after waking with a sense of urgency to go and see her. I sat with her for an hour and a half talking to her about things we did together as a family and when the kids were young. I was holding her hand and told her it...
  6. SteveS

    MichelineS, time is near --- now over

    To all of Micheline’s online friends and family, I come here posting with mixed emotions. A bedside vigil has started for Micheline and they feel these are her final hours. She has been induced in to a coma like state and we are just waiting for the Dr to call and instruct the nurses to remove...
  7. SteveS

    shaking from pills

    I've noticed visiting Micheline that morphine gives her the shakes. She went from pills to injections for pain management. She is going off her bi pap soon and upping the morphine. Soon enough I guess she wont have to worry about any of it.
  8. SteveS

    Our Friendly Neighborhood watch

    Micheline(_h) is in an assisted living facility. She has now lost the use of her arms and hands. Her breathing continues to worsen and she is tied to her bipap more than ever. We did however watch our 18yr old son graduate on Monday along with 250 other kids and it was a proud moment for both of...
  9. SteveS

    "Drive Lock Out" due to mercury switch?

    This has happened to Micheline as well with the same chair (mercury switches). Not to mention the the piston on one of the leg rests has broken down and needed replacing 3 times in less than a year. 21 thousand dollars for a chair that breaks down non stop...terrible. I will recommend the...
  10. SteveS

    Things have been ok. I went and saw Mich for the first time in a few weeks today . It was good...

    Things have been ok. I went and saw Mich for the first time in a few weeks today . It was good to see her.The facility she is in is huge and confusing to navigate. All the people there seem nice however. I got the 2 dollar tour. She seemed ok and knew all the names of the staff and residents as...
  11. SteveS

    She moved last week in to a care facility. Kind of ironic that she moved on her 39th birthday in...

    She moved last week in to a care facility. Kind of ironic that she moved on her 39th birthday in to an old folks home. I know she hates it. Unfortunately her and I were unable to find a comfortable place to co-exist under the same roof under the circumstances. She had stopped going on line for...
  12. SteveS

    breathing

    Just a small update. Last Sunday night/Monday morning @ 1am I was awoken by Micheline yelling from the bedroom. It happened again (respiratory distress). I tried to manually bag her for an hour and finally called 911. She has been in the hospital again ever since. They found an infection in her...
  13. SteveS

    Cannabis/Hemp for ALS

    Re: This might sound crazy! I think the first thing people need to do is look past the propaganda that the government has been trying to feed us since around 1937 and earlier (1937 Marihuana Tax Act, Pub. 238, 75th Congress, 50 Stat. 551 (Aug. 2, 1937)) Most of this was brought about as a way...
  14. SteveS

    breathing

    They did a complete scan for more clots and looks like that is it. They are however looking more closely at her heart. Haven't gotten the results from that yet but Mich seems to think it wasn't great. She was watching the tech as he was doing it. They took over 200 pictures I guess. She should...
  15. SteveS

    breathing

    I saw her a few times yesterday and she was definitely looking better and very anxious to get out. They are running more tests today and we will know better after that. I will tell her everyone has been sending well wishes. Will update after work and I stop in and see her.
Back
Top