Recent content by stevef

Jeff You truely are a great man and congrats on all your efforts. I am sorry I have not been here in a long time to help everyone out but I was taking a break. I hope all well with you and hope to keep in touch. Thank You for the effort you put infor all the Vets out there Steve

Hi Al and VMD thank you for responding to my post. Vmd I did not mean to exclude you or anyone esle I missed. You are all such wonderful peoepl and I pray all the time. Jeff that is great news about Veterans i am sure your effort had much to do with it also

Not sure how many people here know me especially since I have not been online or posted much in a long time. I have not stopped thinking about any of you. Cindy I hope you are doing good and enjoying the Boston Summer and of course another Boston Championship. Jeff (Zenarcher) just wanted to say...

loss of word Lorie I am so sorry you are going though this. You are such a wonderful person and I pray for you that things will get better. I also wnat to say Thank You for all you do in trying to gain awearness for ALS please continue to do what you can in the best of your abilities. It is...

please Go Lorie i know you have so much on your plate with taking care of your daughter and Tim but we really need someone like you who will speak her mind to the higher ups. Please consider going to DC in May and speak up for everyone in this site

Michelle I am so sorry to hear about the loss of your Dad and your hero. I can only say he is in a better place that you will one day join him. Jesus promise us for those you believe will enjoy eternal life and peace a place there is no such horriable disease as ALS. May God bless you and your...

I agree i am so glad you said something Steve. that comment has no place in this site. I am a young person myself but would never say that to anyone.

It is terriable that people would lie about that. why would they unless they make money off lithuim. I know one thing I trust what the people in here are saying about Lithuim and some of it looks incouraging. God hopefully will find a treatment and a cure soon and maybe the lithuim is a start.

sorry to hear Rich Sorry to hear about your Dads Dx. I am from Weymouth also. What clinic in Boston are you going to. everyone sypmtoms seem to be different in the progression of the disease so nothing is set in stone. I have heard somewhere that Massachusetts has either built or is building a...

Has anyone in here heard any results of the diaphragm placing. Is anyone here on it and is it successful

letter to king I sent a letter to cnn so hopfully will here back but I doubt it. Not that autism is not important but they had something on it the other night and maybe they will do something for als. Everyone should go to CNN.com and email them to try and get things going

I was wondering does anyone know what else could cause atrophy other then ALS. Can a back problems that blocks the nerve really cuase atrophy or can other nerve diseases and muscle disease cause it? Is atrophy that seems to happen within 2 month or so be cuased by something other then ALS.? Also...

Jim Jim I in no way meant to bad mouth ALSTDI. I was just wondering why on their forums it seems like a negative reaction about the lithuim. I can understand their concern and there questions about the study. However if people are willing to try it then why not do a study on humans. I have...

latest from FDA and CytRX We now have clarity on the FDA's decision and are actively analyzing data from the previously completed toxicology study to prepare a response that addresses the issues cited by the FDA. Following further analysis and after discussion with the FDA, we will assess the...

negative view from alstdi There is alot of negative reaction from that forum about Lithuim. I truely hope and pray that Lithuim works. This is just one comment about it and I hope ALS reasearch does not get blacklisted becuase there still is hope that a cure or slowing of progression will come...