Recent content by stan453

We find a new normal every day and enjoy it the best we can. Love ice cream and now more than ever the milkshakes!

Sorry to hear about your dad. Sounds like you have a great family situation with a lot of caring people to help. In addition to this forum, another good resource is your local ALS support group meetings. We learn something in how to help daily living in every meeting.

I have had my wheels go over the edge of my ramps. We solved the problem by attaching 1" thick x 4" high wood side rails. Works great.

I was denied by United Health Care. They said in denial letter Radicava was experimental. My Doctor is appealing.

Clint, I am the same way, I do not get on this site too much. Sorry to hear about your fall and torn ligament. I have fallen 5 or 6 times and luckily haven't had more than just bruises. I use my cane all of the time and a walker around the house. I am still working, but it gets more...

My PT does TENS, deep muscle massage and some exercises that all seem to help postpone my symptoms. It is still a gradual decline, but I am trying to do as much as I can. PT also did acupuncture 9 or 10 times and didn't help so he stopped. I take Zanaflex at night to help with the cramping...

Bulldog29 From reading some of your posts, it appears your story and time frame mirrors mine. I had surgery August 2015 on C4,5 and 6 and L4, & 5. It didn't cure my foot drop / leg issues. Neurosurgeon said it would take 4 to 6 months for nerve to re-generate. Never did. Since January of...

Bob, I started developing symptoms about 18 months ago. My Neurologist at Cleveland Clinic has diagnosed me with a UMND and probably PLS, but said it could be 2 to 3 years before he could definitively say it was PLS and not ALS