Recent content by stacykoca

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    Diaphragm Stimulation Device

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    Stimulation of Diaphragm Muscle in ALS

    Diaphragm Stimulation Device Is anyone familiar with the diaphragm stimulation device? I just read about it in this month MDA/ALS magazine. I would love to hear personal experiences regarding this device. Thanks so much for your wisdom and hope. Stacy
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    Bulbar Symptoms

    Does anyone know if it is possible for ALS to progress with out any bulbar symptoms? From what I've read, if your ALS symptoms didn't begin as bulbar symptoms, problems with speaking, chewing, swallowing, etc... will eventually occur as the ALS advances. My sweet friend can only move her neck...
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    Shoulder Pain

    Thanks so much for all your replys. I appreciate all the information! Stacy
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    Shoulder Pain

    Patricia, Thanks for your reply. The PT is supposed to be coming out this week and I will ask about specific excersises we can do. Stacy
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    Shoulder Pain

    I am taking care of a friend of mine with ALS. Except for a few fingers, she is unable to move below the neck. The last several days she has complained of severe shoulder pain, and it almost appears her shoulders, at least her left one, may be dislocated. Is this something common that occurs...
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    Has anyone heard of Griseofulvin

    Michael, Thank you so much for sharing research with me. I have passed it along to my friend. I appreciate all the help you and others on this forum have given me as I have helped her research different options. Your kindness and concern have been great and you all are in my thoughts and...
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    Has anyone heard of Griseofulvin

    Thanks Al for your response. I have a son with autism and I thought there where a lot of scammers hawking a cure for autism, but the ALS scammers may have them beat. I don't know how people sleep nights knowing they are cheating vulnerable, desperate people. I wish you all the best and...
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    Has anyone heard of Griseofulvin

    I have a friend with ALS. A mutual friend of both of ours has heard about a gentleman named Sherman Smith. He says he has stopped his ALS symptoms with a drug called Grizeofulvan. He has a web site that explains his experience. The web site isn't selling anything, however I was hesitant to link...
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    Can ALS symptoms come and go?

    John, I really appreciate you taking time to answer, and sharing your experience. I wish you and Barry the best, and will keep you two in my prayers as well. I have spent the last several days reading this forum and it encourages me that ALS doesn't seem to get the best of folks, and they still...
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    Can ALS symptoms come and go?

    Please answer I have another question. I am anxiously checking back for replies to my first question... And, the above poster is very interested in hearing from ya'll ( I live in the South) as well. My friend went for a second opinion today. The neurologist told her that her symptoms were...
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    Can ALS symptoms come and go?

    I have a very dear friend that was recently diagnosed with ALS. I have gotten a lot of encouragement and information from your forums, and now I have a few questions. Last week my friend was lying on her bed and couldn't raise one of her legs, but could the other. Now she can lift both legs...
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