Recent content by spud01

reply Darren, You have a lot on your plate. I am so sorry to hear about your troubles. I can assure you you will find friends and support on this website. I have found so much support, it has been overwhelming and incredible. How old are you? It would be wonderful if you could move...

it is true. When I started researching this disease through my journey, I was appauled at the lack of support and funding this horrific disease has. Like you said, for as long as it has been around, it is a shame we have not progressed with any treatment thus far. Terri

Everyone, Thank you for being so gracious. God Bless, Hoping everyone the best Terri

I feel the need to say this forum is an incredible wealth of support and compassion. The few months I have been on here has been incredible. I can't imagine finding this much compassion and support anywhere else. As I go through my journey of going to neurologists, they do not feel I have a...

Have you guys heard of Jonathan Blais, He is suppose to be a gentleman who has ALS, and is either going to do or has already done the ironman competition. He is raising money for ALS research. I Saw him on the internet, wondering if this is true or not. Terri

Spending more quality time with my family and friends. Terri

Hi everyone, I am not sure how to start a new post. I still haven't learned, so I apologize if I am in the wrong spot. Has anyone heard of a guy named, Jonathan Blais. He apparently is a guy with ALS, who is either did or is going to complete the ironman competition. Is this for real or...

Gigi Happy Birthday to you! Terri

Dear zny444, You know you mentioned butt pain that radiates to the groin. That doesn't sound like ALS. Have you had an MRI of the spine, specifically lumbar, maybe what you are experiencing is a sciatica. That pain can be very painful. And like everyone says, the muscle twitching could...

Kazzy, I am thinking of you hoping for the best. I definitely agree waiting is the worst. Terri

baby Granny, congratulations on your beautiful new baby girl. Lots of hugs and kisse. Terri

Dear zny444, Try not to stress yourself out. There are alot of reasons for fasiculations, anxiety makes them worst, so if you are anxious about them, you will feel everyone of them. With being evaluated by all those specialists, learn to trust your doctors. Don't let your mind play games...

hey Hello Megan, Please, Please, Please, stay off the webstite. As you mentioned you thought you were a bit of a hypochondriac. If this is true, you can not read the internet in the right frame of mind. you will find every symptom and connect your self to it. It is a mind game your...

voice hoarsness Is voice hoarsness a part of ALS symptom, like if you have laryngitis. Anyone happened to experience this. I don't have any choking or swallowing problems. Terri

Jingles Jingles, I sent you a private email. I am here for you, if you need anything at all. I am not too far away, just a plane ride away. Terri