Recent content by sootylad

Hi Mrs Tomlinson I look after my husband who has bulbar palsy. there are lots of ways you can help and in fact you could play a critical role in ensuring his quality of life. We have a very good support network of friends and family. As his primary carer I am basically tired all the time. I...

hi Lauretta My husband is 51 and we have been living with this for four years now. We decided not to spend time on the "why" question, but focussed on the what now, I am thrilled that my husband has lived so long and that the children, friends and family have been playing such an important...

Hi first time on this site. My husband has had bulbar palsy/mnd for four years now. He was very opposed to the concept of the PEG. It came down to the choice of getting the Peg or starving to death as he was just unable to get enough food and fluids He had lost a lot of wieght and they kept...