Recent content by Sonne

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    ALS - diabetes T2

    I have t2 as well as als- don't think there is a link between the 2. i'm on metform and control my diet. it doesn't seem to be an issue.
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    MND = ALS?? What is the distinction between ALS and MND?

    Ask an English doctor and they say MND (motor neuron disease) is the same as ALS in the Northen American sphere. Canadians, we know it as either or.
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    Progression discussion

    I agree Nikki. I think with this diagnoses there are too many variants to set a definite progression. I see my neurologist once a year and tell him what I can atill do and what I can't. I've had 2 emgs and was told only that I didn't have MS. That was 5 years ago now. He says I'm doing well...
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    Haunted

    Grief doesn't come in a pretty wrapped box with a lovely satin bow- although love can. Yes grief has many turns for us who have loved and even for those and maybe more so for those who have stopped loving. I too seemed to love my husband as much, maybe more after his death. I had to fill the...
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    Husband hates BPAP

    My symptoms started as mostly bulbar almost 9 years ago now and I wasn't diagnosed until 2018- 2019. It's just been in the past 2 years that I'm having more trouble with walking and using my hands. I started on Bipap in 2012 and yes it certainly does take some time to get use to it. Yes it...
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    Neck Extensor Muscle Weakness

    I've had neck weakness for a long time now. Long before I got a definite diagnose of ALS. I have trouble holding my head up and it drops forward for much of the day, which causes me problems with my spine and so forth. I purchased a neck brace from Symmetric Designs on Salt Spring Island, BC...
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    Assisted Suicide

    <religious content removed; feel free to post in Religion> Know that no one has the right to judge you about the decisions you have made and I also know that there are people who will try to. They have even greater fears than you have so don't take anything they might say to you to heart. Be...
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    Assisted Suicide

    Hi Cindy- I now your situation all too well. I have ALS and live in Toronto. In Canada we call it an Assisted Death, which is indeed different from assisted suicide, in that it acknowledges death as opposed to suicide. A sutble difference I know but still a difference as it takes the...
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    Advice needed

    Really? Not so brave. It is what it is. We do what we ca. We do our best. We put love and respect at the forefront of all our decisions and actions and no one can say we have been anything less. All the best for the holidays.
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    Adaptive Paint brush

    I paint and do anything I can with my hands. I don't have a lot of money so spending what I have on swpecialized equippment is not possible. On bad days when I'm constantly dropping my paint brush I take a thick elastic and wrap around my brush to thicken it and lessen the slippiness, then I...
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    Advice needed

    There's nothing irrational or over emotional when one has to care for a loved one and care for themselves. Nothing. Take care of yourself first as if you don't you can't care for your husband. Honest direct conversations are always the best. You might ask your daughter if she can spend more...
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    COVID Vaccine

    This is for Canadians: Phase 1 for long-term care residents, comprised and senior people, health care personale, including hospital, public health & home care staff & clients, first responders (including prison staff and so forth and care givers of compromised persons. Phase 2 general population...
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    Uncle Diagnosed - How Early Were Symtoms?

    Remeber Stephen Hawkins lived with ALS for 40 years and more.
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    Uncle Diagnosed - How Early Were Symtoms?

    My symptoms started 10 years ago with difficulty swallowing, some stumlbing and noticed dropping of things and minor problems with speech. Two years ago I was diagnosed with ALS and I have no doubt that is a correct diagnosis. I am still walking in my apartment although it is getting...
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    Question about living situation

    Stephen Hawkins was diagnosed at age 21 in his final year at Oxford. He lived with ALS for 55 years. Yes while that's very rare it is possible. I've had ALS now for over 10 years and am now 67. So a two year prognose is more common it is not an absolute. I believe the more content and...
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