Sonne

First suspected ALS in 2010. They believed I had either a congenital neuro disorder or MS. As my weakness has progressed in Dec. 2018 diagnosed with probable ALS and in early 2019 with definite ALS. Symptoms have evolved slowly but steadily. Still able to walk in my apartment, paint & write. I tend to be a pusher and a half full glass person but also know when to accept, adapt and to change behavior. When working in home-care I learned how important it is for us to do so. I worked with people who had ALS, MS, Ataxia, Cancers, Cardiac & Lung problems and so forth.
I have always been an activist working towards a better world, although now I do much less. I am an oil painter doing mostly portraits and personal work. I have written plays, short stories and am working on a short novel now.
My husband died in 1999 from cancer. I live by myself with my black cat Sally, who is a beauty but can also be quite bitchy, but I do love her. I have 2 talented & wonderful sons, 1 in BC & the other here in Toronto.
I live one day at a time and try to enjoy it for what it is. I've learned that it is what it is and I try to make the best of it. We must be able to bend when we need too.
Birthday
Aug 20, 1953 (Age: 69)
Location
Toronto. On
Reason
DX MND
Diagnosis
12/2018
Country
CA
State
ON
City
Toronto
Occupation
retired home-care worker/ visual artist & writer

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