Recent content by sohail009

I am very sorry for your loss, and I am sure it must be very very hard decision for you to let her go.

On 13th Jan 2020 my father soul has left the body. I strongly believe whatever happen is good for him. He lived his life completely independent, never even asked anyone to bring him a glass of water, until ALS, which makes him fully dependent on us. His ALS progression was VERY fast, he was...

Has your father tested genetically? Answer is NO. So far I have not seen anyone in my close relatives if they had ALS.

Sorry to hear about your mother. My father case is almost same. He has bladder cancer and after his Chemo, specially on his last visit they insert the needle in his back which actually he felt hit on his spinal. It was a true case of carelessness but anyway after that his condition was declined...

No. Should I?

I am sorry ... I meant Stiff... And we have a physiotherapist visit him everyday from past 2 months but I don't see any progress.

My father legs becomes very and very stuffed at night, it's so stuffed that he has to wake up. Doctors give him medicine for muscle relaxant but seems that's also not working. Is their anything related to ALS progression or its something different than ALS? Any idea or suggestions? Thanks.

I heard Nurown has made some promising improvements in reverse ALS symptoms in patients. Wondering if any forum member have any insight updates like when it will be available in market?

I am in highly doubts its maybe related to very high stress from couple of years in my body and low testosterone which causing weakness and twitching. But obviously you don't want to rule out the ALS. I have not experiened any muscle function degrades, its only weakness, shrinking in muscles in...

My fathers ALS symptoms starts right after he done his first chemotherapy. On next round of chemo, his symptoms becomes more worst and then in third round he was almost on wheelchair. We thought its chemo reactions and after various tests and rounds to hospital finally end up at neurologist and...

This year my father was diagnosed with ALS. I was so busy and shocked for this diagnosed until lately i realized I am having kind of same symptoms. From past couple of months suddenly my musceles shrink as well as feeling lot weaker and lately i am seeing lot of muscle twitches which stays for...

I was confident in US it will be expensive. But one day I just made a call and surprised the cost. Its less cheaper than Singapore. I am exploring India option. I came to know Sun Pharma in India was authorized back in 2013 to produce generic. Lets see so far I came to know in India it is USD...

I agree with you. Even doctor told me after sometime, when he is at last stage, we will stop with this medicine. Besides as per Wiki, it just prolong 3 months of life thats it. From Malaysia you bring in one or two packs if you travel by bus, usually they dont check as 1000’s peoples travel...

That's a problem. I am obviously willing to buy without Insurance but US RX is mandatory. Costco pharmacist suggest even if a GP can write a prescription we are willing to sale you. But I am highly in doubt a GP will write such prescription.

Thanks Karen. I already checked couple of online Canadian and US pharmacies but I was not sure if they are scam or real ones. But anyway at least the pharmacies I checked they were looking for prescription.