Recent content by SNicole

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    Bulbar ALS?

    Alright yall. Today I got 2 dx : one of HKPP(periodic paralysis) which is actually a gene mutation. You can live with it, it just sucks because you really have to watch what you eat 2nd dx: autoimmune calcium n-type calcium channel. Which I am going to have some treatment for and luckily some...
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    Bulbar ALS?

    Thank you. I would really hope so! Just seen a variety of stories so it makes me wonder of course
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    Bulbar ALS?

    Okay good idea. Did they find anything or was it just the EMG that diagnosed you? Im wondering if the speech specialist will even find anything being that no one really notices my issues, I dont want to do anything that would be wasting time. Hopefully the specialist does similar to me what...
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    Bulbar ALS?

    Thanks for the reply! So the next step is for me to see a speech/voice specialist and see if they find anything strange. And yes for the longest time I thought it ran more along the lines of MS , simply from the numbness and tingling of my face, but that got ruled out through the MRI (even...
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    Bulbar ALS?

    Alright so about two months ago I opened a post stating that my speech/sudden lisp has been bothering me. (I couldnt figure out how to re-open the thread so im sorry for posting twice) And honestly it has gotten worse, many s and z’s now come out as a whistle and i have to talk slower to make...
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    Genuinely Concerned

    Went to the Neuro today. He is ordering and EMG. Theres many more symptoms that I haven't quite mentioned on this forum. I believe the examination went well, he said it doesn't look like anything severe, but did say it looked like a neuromuscular issue. Had a quick question about twitching (I...
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    Genuinely Concerned

    Thanks girly, hopefully whatever this is gets solved soon enough. Driving myself nuts.
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    Genuinely Concerned

    Thank you , much appreciated! Yea the last time I had an MRI was prior to the brain trauma so who knows what going on up there lol.
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    Genuinely Concerned

    If you dont mind me asking, is it possible to start messing up with certain consanants, or would you typically have the ‘drunk slur’ right away? Im very lispy and my cheeks feel like jello so its bothersome. Thank you
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    Genuinely Concerned

    Thank you bud! It’s just coming down to the wire where I wouldnt know what else it could be , and yes Ive done my research lol:) The neurologist at the ER said i was a “Zebra” , stating that my symptoms fall into many different categories and this is why she recommended a neuro clinic. (The ER...
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    Genuinely Concerned

    So the arm issue happens randomly. It is perfectly fine in daily activities but it has days where it happens, I never know whens its coming on becaus it happens suddenly. I think at this point it is my speech that is really getting to me. Thank you so much! If it were ALS would it have gotten...
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    Genuinely Concerned

    Hello! So my concern started about two months ago when I was 5 minutes in exercise and suddenly my arms became heavy to the point it was hard for me to even pick up my water .(and yes I ate well that day and was hydrated). This has happened before and I had ignored it, but this time I felt like...
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