Recent content by smoki611

Dr. is only working 1 day a week now and has sent her to the new Neurology Clinic (part of Brigham's & Women's) they just moved right down the street from 75 Francis st. The new doctor that Dr Ropper has sent her to is Dr. Salajegheh a clinical neurophysiology neuromuscular disease Dr , he...

Hello, my daughter is 47 & for the last year has been in & out of hospitals & neurologists for Blood work, Spinal taps, Emgs, Mri's, DNA & reg blood work and the bottom line is MND, but they cannot find exactly what type it is, but was quick to rule out ALS. She needs a rollator and has...

Nikki she is going to see doctor Allan Ropper, he is supposed to be the best in Boston Brigham & Womans

Thank you all for being so kind. Kim, when you say final EMG, how many did they give you and how far apart were they? Did anyone ever have the neurologist say it looks like Post Polio (when you never had Polio?) Nikki, the Doctor in Boston is Doctor Allan Ropper. Not sure if I asked this...

Thanks Nikki, this is how it went; Blood test (many) Breathing test, Xrays, MRI's neck & spine, EMG Neurologist wrote it is definitely a MND & possibly ALS/Life threatening disease We are now scheduled to go to Boston in 2 weeks to see a top Neurologist The person that took the EMG said it looks...

Is it the EMG test the final test that confirms you have ALS?

Thank you Nikki, Yes she has been diagnosed with MND for sure. She had the EMG. The doctor wrote on his report that was being sent to the Boston hospital just like this of what he is thinking; ALS/Life Threatening Disease I will go the other post, sorry about that.

Just curious to see what test finally gave you the answer that (yes) you have ALS. Thank you

I am sorry, it is my daughter& she is my best friend. That is what I thought too regarding ALS, that it has been going on for a very long time but just getting worse every month for the last year. Like I said he said it is a Muscle Nerve Disease for sure. It is like peeling back an onion, one...

I'm sorry, I meant to say with these symptoms would they last this long with ALS?

My friend had many blood test, breathing test, MRI of the spine & neck (not the brain and don't know why) EMG (the person who took it asked if she had polio because it looked like post polio & no she never had polio. They said they do no think MS, Lyme, RA. The Neurologist said it is MND & he...