Stu ... this is part of the e-mail I am going to send to a guy at the Times. Let me know if the info is correct, or any changes you would like in how I describe you and ALSGA. If you'll send me an e-mail address, I'll cc you on the final e-mail, otherwise I'll cut n' paste it here.
... Last week, I was really amazed to meet a guy who is going the foundation route alone ... and he’s not Bill Gates. He had met an ALS patient and was so dismayed by the difficulties of her daily life that he set up his own foundation ... ALS Guardian Angels ... and donates grants for equipment, transportation, nursing consultations ... whatever is needed most by ALS patients. All the foundation’s money goes directly to patients (and is out of his pocket).
Beth