Recent content by slicknscoot

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    Questions

    She hasn't really tried the bi-pap yet but they have given us some anxiety meds to try when she is ready. The latest battle is constipation... I think she is just too weak to push pudding consistancy poop out. She poops at least 2 times a day but she says its only a little bit and then the...
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    You found me jackie....lol

    You found me jackie....lol
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    That would be great to do. You can chat here or look me up on facebook tammy koonsman

    That would be great to do. You can chat here or look me up on facebook tammy koonsman
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    Scared of these later stages ! And what to expect

    I too am wonderingbthe same. My mother inlaw refuses bipap and ventilator. Her lung capacity is at 42% as of nov 8th but I feel its dropping even more. She still walks but very slow. She does have a feeding tube but has lost 9lbs in the last month and doesn't do anything but sleep and go to the...
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    ALS famlies with children....

    my children are 11 and 13. They are grandchildren to our pals. We all live together and support her everyday. I am her caretaker.
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    I will make sure to watch that 1. Ty so much.

    I will make sure to watch that 1. Ty so much.
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    Questions

    My mother inlaw just received her Bipap and is refusing to get used to it. She keeps saying that it won't be long till she's going to pass on and feels that she doesn't want to use another equipment. Her onset problem of drop foot began in May 2010. She was diagnosed Aug 2012. She is walking...
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    Caregiver of Mother in law

    She just got the bipap yesterday but it will take some getting use to.... she says its very hard to breathe with it as she feels it takes her breath away. she's unable to get medicare due to age and the fact that she hasn't worked in 10 years. She has tricare prime and has an evaluation for the...
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    Caregiver of Mother in law

    Thanks for the moral support. Some days are better than others. The newest struggle is cooking.... she says that when I cook in the house, then she has a hard time breathing. I notice that its a little better when things are cooked in the slow cooker but if its on or in the stove then she...
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    Breathing Issues

    My mil gets short of breath while walking. Our new problem is she can't breathe when I'm cooking or baking. She is very sensitive to smells. Her bipap comes tomorrow as her lungs are at 42%. When she is sitting, her oxygen is 95%. Never had it tested while she is walking with her walker. I will...
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    Housing options for my Mother-in-Law who was just diagnosed:(

    I can feel what you are going through. My husband and I decided to move his mother in with us when our house was too small. We decided to buy another house to accomodate her needs. It took six months of looking everday and we looked at 120 houses on the retail market until we found our new...
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    If you could improve one thing about ALS...

    I have to agree with the assistance with caregivers. I am a ft caregiver to my mil and have two children ages eleven and thirteen. I have been to every appointment with my mil. There seems to be alot of help and support for her needs but none for the caregivers and family. I have decided to...
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    Caregiver of Mother in law

    I'm new to the forum. My mother in law was diagnosed Aug 2012 with ALS. Her symptoms began with drop foot in her right leg in July 2010. By July 2011, she had lost most of her balance and was starting to loose strength in her hands. Then she started slurring and having difficulty swallowing...
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