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  • Tired of all the Dr Appts.
    Every time I turn around I either get a call or mail setting another appt for me. I should be happy that the VA is so attentive to my ALS needs but all the running to appts is wearing me out faster than the ALS progression. I was diagnosed 10-19-2011. !st they thought I had Myesthina Gravis. Further testing and a 2nd opinion confirmed ALS. The VA is so aggressive with treatment that from one dept to another they seem to be overlapping. Also its a 3 hour drive and sometimes a hotel stay the night before if an early appt. I can't wait for things to settle down. It feels like I am managing an office keeping track and trying to coordinate all the appts. Just letting off some steam.
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