Recent content by skode

Hello Beth I take the Senna daily at bed time. If I don't get a bowel movement after the third day, I'll take the Enulose after dinner and within a hour, I usually feel the urge to go. If I can't go by bed time, we use the liquid glycerin suppositories by Fleet. Within 5 minutes, I'll be singing...

Sandra I know for certain that we never lose the people we love, even to death. They continue to participate in every act, thought and decision we make. Their love leaves an indelible imprint in our memories. We find comfort in knowing that having shared their love has enriched our lives. Though...

An external condom catheter provides an excellent solution for urination problems. I’ve used one 24/7 for quite a while now with great success. From my own personal experience, nothing breaks a man’s spirit more than putting a diaper on him. It’s understandable if a PALS is bed-bound or has...

Here is a good article on this subject: Don’t Let Leg Swelling Go Untreated http://www.mdausa.org/publications/als/als9_2.html#legswelling Pat

BEEN THERE, DONE THAT, STILL NO STEP#3

Lisa You've already been given some excellent advice and I wish that I could tell you what you want to hear, but all I can offer is some information. Take it for what it's worth. MUSCLE AND NERVE BIOPSY IN DIAGNOSIS OF ALS http://www.mdausa.org/publications/als/als4_1.html#shebert Often it...

It's not working for me either. The options for a custom avatar doesn't appear.

zny444 Stay calm; the odds are very much you don't have ALS. Some neurologists estimate that as many as 15% of the people diagnosed with ALS have been incorrectly diagnosed. Self-diagnosis is not a wise idea; it can cause unnecessary stress and anxiety. A lot of people read about the symptoms of...

You're correct Leah, I posted too quickly before going out and meant to add for the purposes of saliva management only. Never heard of any other use of botox for ALS. Sorry for any confusion. Pat

Yes, I've heard of using botox. Check out: http://www.mdausa.org/publications/als/als6_5.html#managingsaliva

I've noticed several new PALS & CALS here, so I thought to address you all at once. I am sorry to welcome you to the ALS family - the club nobody wants to be in. Perhaps by sharing some of our knowledge and experience will make your journey a little easier and help minimize the stress of the...

Just wanted to pass this on: http://parentswish.com/ "Life is like a dance; you learn as you go. PAT

For some good info on salvia problems, read the following articles: MANAGING SALIVA IN ALS http://www.mdausa.org/publications/als/als6_5.html#managingsaliva SALIVA MANAGEMENT (on page 10 of MND News) http://www.mndanz.org.nz/attachments/web_version1.doc

Hi Dave Still can't get step #3 to show up?:confused: PAT

Jane May you find comfort and peace that your sister is happy and healthy in her heavenly body and rejoicing with the angels. I know for certain that we never lose the people we love, even to death. They continue to participate in every act, thought and decision we make. Their love leaves an...