Recent content by SKlocinski

I had heard that also. My husband passed away in July of 2016 and I sold my house and moved back to Kentucky to be close to my family in January of 2017. I also adopted a Chihuahua from a shelter in South Carolina in September of 2016 because I felt like I had no purpose and he gave me a reason...

I don't really have any advice for you. Tom never could get used to the bi-pap. I felt like he never really gave it a chance as he never tried using it with any consistency. I have heard though that it does take a while to get used to it

Tracy, I felt the same way. It seemed like nothing ever went smoothly and no one ever did what they were supposed to do when they were supposed to do it. Frustrating, to say the least

I know exactly how you feel. My husband, Tom, would not use his bi-pap. He had a feeding tube but would not let me feed him enough to sustain life. It is very hard to see someone you love getting weaker and weaker, especially when they don't seem to be doing the things that could at least help...

I don't feel like I want to sleep all the time but I have a hard time getting up in the morning. I was always an early riser. I would get up early, read my paper and drink my coffee and then get about my day. Now, I get up, go sit in the recliner, take a little nap, read a little paper, take...

I think it is normal to feel that irritation. I did not have it so much with Tom but then the time I had to deal with being woken in the night was very short...only about a week before he passed away. I do, however, remember going to visit with my mother when she had Alzheimer's and feeling very...

When Tom began having hallucinations I thought that the end might be near. I was still surprised the day that it happened because I had this picture in my head that he would be having difficulty breathing and he would be in bed and hospice would be giving him morphine. While he was having a "bad...

My husband was on hospice care for only a very short time. He requested about a month before he died for me to make his funeral arrangements and to get him on hospice so I am sure he knew his time was short. He had bi-pap but would not use it. He also had a feeding tube but could not or would...

If you want to see the doctor's notes you will need to order your record...you can do that on the MUSC patient portal. The first 25 pages are free and there is a nominal fee for each page after that. I used to order one whenever Tom had a visit because many times there would be things in the...

Good for you! My father-in-law wanted "a party with an open bar" when he passed away. So, my mother-in-law waited until his birthday and threw him a party. What a wonderful way to honor Bob's wishes. So sorry for your loss. My husband, Tom, was diagnosed in February and passed away in July so...

My husband passed away July 21st. For the last couple of months he was so fatigued that he could barely move although he actually did not have any limbs that were paralyzed. I, too, sometimes wished for him to go as I knew that he had no life and that he felt really bad. Of course, now that he...

Woke up this morning to a small sound that sounded like it came from our closet. Then I heard a man's voice whisper "I'm fine". I don't know if it was because I was in the no man's land between wake and sleep or in a Xanax haze or maybe just coming out of a dream. I am not a believer or a...

Neilswife, my husband Tom also passed on July 21st. He passed peacefully as well, asleep in his favorite recliner chair. That they passed peacefully is one thing we can be grateful for. Though I haven't been on the site for very long and did not know Neil well, I did read his last couple of...

Scotiaspirit, my husband reached that point where going to appointments was just taking more out of him than he had to give. He went on hospice. He would not use his bi-pap and could not or would not (not sure which) take in enough calories even with the tube. He fell asleep in his favorite...

I agree Lenore. Tom was 67 and retired. I cannot imagine having to go through this with kids or having to work. We were married for 37 years so we had a lot of good, healthy years together.