skipper66
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  • Kim and skipper have moved on, but hopefully they will come back through soon.
    Yes, we have snakes, but I don't see them often. In Australian bush you learn to just keep your eye out and move about noisily to alert them as they normally move away as fast as they can :)
    We do get some gorgeous pythons at time. Tillie
    Look I don't appreciate you calling me stupid on here. I do not find this place to be a joke and don't think I don't know how sad it is to suffer or see someone suffer from this disease. I am very sorry to hear about you being a relative to someone with this disease. I have just had similar symptoms to those diagnosed with ALS and was just looking for some answers. ALS has just been on my mind and thats why i decided to post hear. I have had some major anxiety and depression issued due to the fear of having something wrong, but Have a nice day sorry to upset you.
    hi Kim, I do hope you asked Dalvin if you could post on where he is at first.
    hope things are improving for you hon
    Tillie
    Hi Kim, thank you for your prayers and most of all for your friendship! I am so glad to have met such wonderful people who understand what I am going through. Here is looking forward to a better month ahead! So glad February is over! Hugs ~ Kaye
    AW Kim - thanks so very much - I really feel at home here, with all my 'buddies' on the ALS forums - WOW, I feel so great after 'chatting' with you all. Smooches atcha, girl! xoxoxo
    oh kim thank you very much!!! I guess I'm just grasping at straws here, but when its all you have left we start grasping!!!
    With all the info I have from this forum and all the freinds Ive made here, I know whats coming and i knw what to expect, ......somehow it just seem different when it comes time to happen to you. Ronnie and I just had a LITTLE conversation after the Dr. and chaplin just left, and I asked him if after we get a handle on the meds does he feel like he can go home, and he shook his head no.... even with the amount of moriphine they are giving he still cant go without AVAPS. So, it doesent look too good.....
    but I just wanted to thank you for the prayers, they will be reciepricated!! May God bless you and yours!!!
    I've been thanking those very helpful members that have helped contribute to my threads. I really appreciate your insights, Skipper. You have been helpful. You, Tilly, and Nikki all contributed to lessening my anxiety to a degree where I am actually able to function. Your helpfulness is appreciated by all members. Ideally my stay here is short, but you guys have made it worthwhile with your insight and recommendations.
    thanks Hon, not coping today at all. I'm about to do do a couple of hours mowing, hopefully that will help :(
    Hey just want to know some info about EMG. I had a Clean EMG and Nerve test last night. It was done on my 2 legs and right arm.

    I am worried as to whether i should have also received in on my left arm, does that make any different if you have received it on 2 legs and one arm?

    also would something like Bulbar onset show up on EMG or nerve test?

    I feel like there is a lump in my throat, i have difficulty swallowing. My mouth is really dry

    Does clean EMG like i got mean i shouldn't worry about ALS?
    I do not think this is a joke. I am genuinely concerned about my leg because it aches, twitches and im oretty sure i have dent there that wasnt there before. I came here for advice and i am thankful for everyones replies and i understand how hard it is for those affected. I am not pretending to have it at all. Im sorry if i offended you or snyome else
    But that's a personal problem. I keep telling myself that just as soon as this nightmare is over I can pick up the pieces of my life, but it's not getting any better. So goodbye to you and this forum. I hope the next person stuck in the same place I am gets a warmer welcome.
    You know skipper, I wonder about myself too. I'm leaving this site (for the third time) because I finally get it. My posts don't take, they are in poor taste. I haven't gotten a definitive diagnosis. Well, to my credit I WAS given walking papers AND THEN my 2nd opinion said 'I don't see ALS in you' until I read my chart that said 'Probable'.

    Now, think about that for a moment. At 27, I never thought about marriage let alone the ups and downs of a death sentence. Has it made me a little crazy? Definitely. I've been on more psych meds in recent months than I could ever imagine. At 27, I have a pill bottle carrier that is FULL of bottles of 'this and that' combos of anxiety, depression, baclofen, gabepentin, nuedexta, the list goes on. Whether or not my FVC of 70 and my wasted arm is from ALS/MND is no longer in question. ALS has turned my life NO... my family's life upside down.
    Thank you for your kindness Kim. I wonder about people like CP. What kind of person does it take to mess with the terminally ill. I feel sorry for him.
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