skipper66

Good Morning!!

We got about 5 inches although some was melting as it fell. The roads were warm enough that they were just wet. My son is on spring break this week. Its good that you get the strength to dirve yourself to work. Baby steps. Good for you. I am going to ask a personal question.... were you and your husband friends before you married? Maybe friendship is the key to finding a new love with him. Not a dependent love but a friendship love. I don't know just guessing. I hope you have a great day. Hugs.

Thanks Kim for checking in. I retired at the end of February so that I could be home and helping Jim more. I'm so sorry to hear about you and your husband. You never know, something could turn around for you. Glad your Dad is back home and your son can hang out with him. Its good for both. Take care for now.

Hi Kim,
I'm doing well. Rog is whole in God's arms and that is a great comfort to me as his last weeks were pretty horrible for him. I'm sorry to hear of your divorce and I wish you peace with the decision. I'm staying busy and catching up on my sleep.
Hugs,
Jen

Things are going well for me, I am getting involved in a golf tournament for ALS, it will be in August and we are making plans for a huge day. It makes me feel like I am helping in some way to make a difference. I miss my mom like crazy but know she is in a better place. Take advantage of every moment you can with your dad and cherish those smiles. Thanks for sending a note to me, I very much appreciate it.

Dana

Hey Kim. Thanks for the note - it was appreciated.

Thanks Kim!! You are right..we all have those days!! I'm sorry to learn about your divorce. :{

Hi Kim thanks for checking in
My sister is progressing unfortunately.
I am still dealing with my own positive gene test but trying to live for the moment
Take care
Nikki

Had to break my message up....it was too long..

You have a second chance with your husband. That's a good thing and if you both want to be together again, then you will have learned from past mistakes as well as good things, how to change and make the marriage work, for both of you. As for being alone - we just do it. I hope whatever makes you happy, works and happens. Take care, Kim. Take care of your mind and your heart.

Hi Kim. Mum is settling in I suppose but I don't think anybody can really ever accept being in an extended care facility when it wasn't really their choice.
Kim - I am very sorry you're going through all of this with your husband. I haven't been through a divorce - Bob and I were very happily married for over 30 years and didn't fight. We were fortunate to have found each other and our personalities complimented each other - thank goodness! And I can't tell you how to cope being alone because in my mind, death of a spouse and divorce from a spouse are completely different. People who have lost a spouse to death feel differently from each other, as do divorcees. So I can't or won't even try to venture to give you advice. I'm not saying that harshly at all. It's just that I can't do that. It's all too different and it's also very difficult for me to talk about that.

Oh honey,
I was going to ask how you are doing and I just read about your meltdown. Its okay sweetie, you are intitaled. I wish I could make it better for you. I think it must be harder on the caregivers than the patient, you all watch and work so hard knowing there is nothing yhou can do to stop it. I am so sorry.

You are a good daughter and I know your dad appreciates everything you are doing. You may need some extra help on the evening or at least the weekends. Not all weekends but you need some time for yourself. It would make you a better caregiver if you could get away alittle. I am sure your dad would be okay with it. You are going to burn out trying to do to much, if that happens you won't be good for anyone. I am praying for you and sending big hugs.

I sort of had a "melt down" today! Holding down a job and caring for him is difficult to say the least. It is like having two jobs and I hate to think of it that way, but it is very stressful! We have a caregiver hired during the day but on weekends and every evening I'm it. It gets harder as he gets worse. He had a feeding tube, a AVap breathing machine, and a Sip and Puff. He is like your dad. His fingers are curved, he is confined to a wheelchair and it is getting harder to transfer. A wheeled high back shower chair came today, he had to give up his bed for a twin hospital bed, his voice is going and he's practicing with a Dynavox loaner.
My melt down was just a bunch of crying...I'm a girl!! That's our way. LOL.I know it overwhelmed him...ALS is taking my best friend away from me bit by bit.
Lately, I'm remembering when he used to be able to walk, ride a bike, build things (his passion) and now he is like your dad watching Netflix all day.

Kim, I believe it is? I've read enough of your posts to be aware of what is going on with you.....I feel really bad for you. I hope something turns good for you soon, you surly deserve a break. Your last post on the 'come for tea' thread sounded quite positive, overall. I know you will persevere through all of this.....remember Job.....maybe there's some crazy reason for these challenges. You'll win in the end, I'm sure.

Hey skipper
Love that name! Thx for the warm welcome. I grew up in a small twn and the big thrill was to go to the drive-in. I love movies. Don't ask my about titles and actors cuz my memory is bad for those details. I just love getting caught up in a good story. Warm regards

Hi Kim, thanks for messages. not sure about jobs, whether I want to go back to carework or try a new direction, some training maybe for something else. Either way its scary, but I will get on with it somehow, needs must. Hope things are better for you and that you Dad is doing as okay as he can. Take care, Mair

skip...i ave notice you have had problems gf late...hang in there girl..when things aint good they can only get better..loves johnny