skipper66
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  • Thank you Kim, I did actually take a break from here for a bit. I think there was a plan to do a trial but my dad became discouraged when he learned of the possibility of a placebo. My mom is 54. How is your dad doing? It seems like the symptoms have been getting a bit worse for my mom lately. We just got back from a cruise and the entire time she was in a wheelchair. She didn't seem like she had much fun other than when she was in the casino. My dad had a lot on his shoulders and even hurt himself from lifting her in and out of the wheelchair. He thought he dislocated his shoulder. She says her legs aren't really working too good anymore. She is still using the rolling walker for now at home. Thanks for listening. Andrea
    Thank you for the message, Kim.

    I am looking forward to summer time.
    Last year, by this same date, the temperatures here in Maryland hovered around 70's, this year is all the opposite.
    It's very unusual for me going out (unless necessary)when temperatures are below 70's because the cold causes me stiffness in the legs (even 60's I consider cold for my taste).

    How is your Dad doing?
    Is he stable? Is he progressing slowly?

    Take care and look forward to keep communicating with you.
    Kim, hi. I posted only one pic so far of Lourdes. Of the " three sisters". I posted Reno pics too. They're in the far & away album. I'm OK; recovering from a very nasty Parisian cold. Moving in two weeks. Yikes! Lots more to do. Thank God for my sisters and brothers. All 5 are helping us. I am blessed. Hope your Dad is keeping on, keeping on. Hope your time in the new place is giving you peace and time to reflect on your future.
    Just a quick note to say hi. Sorry, but I've gotten a little disappointed with the forum of late....! Seems to be so many newbies that either don't have ALS or are in the unfortunate stage of "waiting" that post continually. All of the "seniors" seem to be either absent of late or have abandoned the forum. I'm going through my own personal hell with this beast and I"m trying to not post anything negative. Praying for you and your family.
    Hey Kim. Thank you. Yes they are our boys... 8 & 10 yrs old. I've been on max dosage of zoloft for a while. It seemed to be working pre-ALS. I do get out on nice days when my wife gets home from work. It's nice as long as it's not too hot/cold/too many bugs...
    Thank you for keeping in touch. I am so glad your father is holding his own and that you are able to be with him. I am doing well. So thankful for a supportive family. Next Wednesday would have been Bill's birthday. My daughter just invited me to go and have a pedicure with her, then lunch and then we will go by the cemetery. Her daughter is graduating high school and will be attending Duke next year so it is an exciting time for their family. All four of my adult children, their spouses, and six grandchildren are great blessings. Hope you are doing well.
    Hugs.
    Hi Kim,
    Glad to hear that your dad is holding steady and getting to see some baseball. Our baseball team is in town for the rest of the week and I'm getting ready to put new flooring down, so I have a lot going on. I miss Rog but know that he is better off. Melissa and Maddie are in Kansas City, MO for the week for a wedding...life is definitely moving on! I hope you have a calm summer.

    Jen
    Hi Kim

    Well arguing over who gets to stay with you probably makes you feel pretty good. I am glad you are getting alot of family time. I hope you have a good weekend too.
    Are you doing ok? I sure hope so. I know you are going through a rough patch and I was thinking about you.
    Thanks Kim. I haven't been checking this site too much lately - sorry for the delay. My mom attempted suicide again in February and spent one month inpatient and another month as an outpatient. Hopefully she can continue to try to live each day as it comes.
    Hi! So sorry I have been MIA. How are things going with your Dad? I hope life is treating you well and your dad's progression is remaining slow. We are doing great, the boys are growing so fast. The grief sneaks up on me now and again but I feel like I am in a really good place. I miss my mom (and dad) so much and its always in the little things. Our oldest (JP, 3yo) said the other day as we passed a cemetary, "Noah (our 2yo), that is where you go to get to Heaven. We can't go now but someday we can and get to see Grandma Sharyn." It was so matter of fact and so sweet. I am thankful they are remembering her and have peace and understanding about where she rests.
    Hugs to you and yours!
    Vic
    Hey Kim, belated Easter greetings. Hope all is well for you and yours! Plugging along this way.....as to be expected. I'm starting to experience fatigue on a whole new level.......
    Hi Kim,

    Glad your son and dad had a great time, even though the cards lost. My hubby watched the ncaa championship game that the Drury Panthers won. They are from Springfield (80 miles from us) and they were a real cinderella team. 1st time to the big dance and all that.

    You know maybe you and your husband will be great friends. I know it must be hard but divorce doesn't mean the absolute end, you have children together. I really hope it all works out for you. I am praying for you. Love ya. Hang in there, its not over yet.
    Hi Kim,
    Glad you had a peaceful Easter and had some time with your Dad. I am doing well, starting to feel comfortable going through Rog's drawers and clothing. Waiting for all the insurance and legal stuff to be done. The VA is as slow as always...
    Hugs,
    Jen
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