Recent content by sjtom

I don’t google because I’ve learned from this site that it’s bad to google bad info. Thanks for your time.

I understand and appreciate your response. Reason I asked is because I joking an online bfs support group. And well almost all members have body wide- Then they start to have bulber issues- I am assuming for the anxiety. But was just looking for a concrete answer on a topic that no one can seem...

Hi, I know I have been here before but I just have a quick question and I don’t want to google.... I have body wide fasics- for over a year, no weakness but feel like I have mouth throat pnd drip issues, constant phlegm. My question- when someone has bulber, and they have bodywide...

Ok, thank you. I’ve actually been off this site for a month. I found the bfs Facebook page and it is a blessing. My reg neuro was kinda bugged that I couldn’t get back to see the muscle neuro and like I said I had no where to turn. Thank you, you are very kind. Thank for all you do on this...

Hi, emg attached. No fibs but mups- just turning here because they are not available to discuss findings with me until June.... Thanks

Sorry for my grammar- I am twitching everywhere. I also have acid reflux that is new.

Hi, we have very similar symptoms. I am concerned with resonatory onset that is very rare. I am reaching every where. Docs say I’m fine.

Ok thank you, I have to stay away from the internet. Read a lot of als patients have increased motor latency and that’s why often confused with Carple tunnel- but I am asssuming those patents also had band emgs. My emg said completely normal- crazy to me since the doctor was watching me twitch...

Hi, I just received my latest emg results. Again, doctors are pushing for the emg - they are trying to figure out symptoms. Emg has no fibs it psw- But it had increased median nerve motor latency. Does anyone know if that is a concern? I don’t have my follow up for 2 months. Thank you, Tom

I had the sensation of bugs crawling on me a Month after the concussion- the twitches started slowly and now are everywhere. All kinds- buzzing- thumpers and my calves are nonstop. When I flex I am not sure if they stop or u can’t see them? Drs have told me that anxiety can do crazy things...

Hi, I just read your post- I also hit my head before my symptoms, fell on my bike. Your post stood out to me because I also feel like my skin is loose stretchy, muscle feels loose. I also twitch constantly. 3 top docs all have said no als but bfs. But I just don’t feel the same. At this...

Simply because I have a had 2 primary doctors, 2 rheumatologist, a gastro dr, a hand dr and a urologist notice my issues and they all have said- go back to the neuro. We don’t have answers. So whatever- I’ll write back after my emg next week But that you for answering the questions.

Hi, I apologize for being back but the drs. can’t get to the root of my issues and keep telling me to go back to the neurologist. The Neuros keep saying come back in 6 months. My last visit drs thought I had celiac but now it turns out that was not the issue. Couple of questions if you don’t...

Hi, I am just posting to help others with the same anxiety I’ve gone through this year. I posted before with flaccid in a week and lmn sign. I’ve seen many top neuros and they agreed that I had something going on but couldn’t find the answer. I also received great advice from senior members here...