Recent content by SJones

Having rapid progression of bulbar symptoms. Local Neuro I saw told her of constant throat mucus and some difficulty swallowing. She just dismissed it. Going to Duke in December but maybe sooner I hope. Diagnosis phase has been very long and painful. Since that Neuro appt my throat mucus and...

I was on this forum previously. My progression has continued rapidly. Now full blown bulbar. Swallowing, front of neck feels like someone is choking me, copious constant throat mucous. And overall weakness and stiffness of arms and legs remain evolving See one of my neuromuscular drs the middle...

Going to try and calm down but it's hard. Will listen to the docs and continue with the diagnostic process. Thanks to all for listening and your comments

Today had appt with new regular neurology doc appt was scheduled long ago so I decided to go. He said emg's that I had are not good for umn dom diagnosis they miss it alot. Especially with my Hoffman , hyperflexia, atrophy, mouth salivation. He wouldn't diagnose me but referred me back to...

I will try to post emg and summary again. I'm so sorry I am not used to sending images or anything . All 3 emg's have been done within a year. Symptoms have been for year and a half. I have read your statement about emg's being done too soon. Answer is no from what I remember. Neuro other day...

Thank you for listening again. Had appointment with neuromuscular Dr. She did very quick clinical exam this time and said my strengths were stable. Each day is worse for me. Pain in legs and hard to walk. Arms aching. All in muscles pain is constant except at rest.. Very stiff. Hyperflexia and...

Thank you for your input. I know you are not here in this forum to diagnose but with all of this progression and all else ruled out do you think this is ALS? Each day is harder less mobility etc. Emg's drs say no ALS but nothing else is showing up. I am thinking about cancelling tomorrow...

Looking for advice please. My symptoms began a year and a half ago. Left leg muscle cramping with twitching in that same thigh muscle. I'm not going to ramble each detail but advancing to today progression has been constant involving both legs, very weak, cramping and twitching muscles in both...

Possible ALS diagnosis now by neuromuscular Dr. Started year and a half ago with left leg now to right leg cramping , twitching muscles, tight painful muscles. All mimics ruled out by way of every scan ,blood test, muscle biopsy. Have had 3 emg's. Hyperreflexia, positive bilateral Hoffman's...