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SJB50

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  • M
    Cheers. Hope things are OK for you, with those tapes gathering dust still.
    What was the name of the MGH neurologist that finally figured out your Pompe? I am looking for a second opinion on my ALS-like symptoms. Any other recommendations? Thanks!
    F
    Hi,

    I wonder how you are doing?
    I too have Pompe on the radar at the moment.
    Isaacs too. My last blood test showed my potassium gated antibodies slightly high, so I guess Isaacs is the suspicion.

    I have progressive swallowing issues.

    I wonder if you are still reading these messages?
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