Recent content by sisterpain

At that point of her disease, my sister used the catheter. It was a blessing for her and all of us. It took her 3-4 weeks and a couple of UTI treatments, but once her body got used to it, that was the best thing for her. She was very happy. We also started to use a diaper even if she had the...

So happy to hear!

Sherry, I am so sorry. so much pain and sadness

Barbie, so sorry for your loss. Sad sad sad to lose so many wonderful people..

My brother -in-Law has a 1999 Dodge Grand Caravan with only 76999 miles (handicap accessible). He bought it when my sister was diagnozed and it came in very handy. It's in good condition and runs great. Besides some dents and knocks on the body, the car is in perfect driving condition. The ramp...

so sorry for your loss!

I apologize to all of you for not introducing myself properly, although i have known most of you for the last three years. My sister Arjana was diagnosed with ALS in April 2012 and lost her battle in May 2015. She was in the prime of her life. 54, married with two grown children. She was my...

I can't find the "new threat" option on my screen. Am i missing something?

Just saw this message, so sorry. My sister was diagnosed in April 2012 and passsed in May 2015, so total 3 years

I completely agree with you, but how do i start a new threat. I don't mean to hijack anyone's thread, just don't know how to start it.

DITTO THAT!An expression that will remain alive among this community forever! thinking of you Max and sending well wishes to you and Sandy !

It is so sweet to see you guys sharing your thoughts and experiences. I wish my brother-in-law would go on this website and read your posts. He and my sister had an amazing relationship and at this point, 3 months after losing her, he is sad and somewhat lost. Thanks Mike for sharing your...

Please accept my sincere condolences! Hope you find peace in remembering that you did everything you could to give him as normal life as an ALS patient can possibly have. My thought and prayers are with you and your family!

Hi Sharon, I agree that you should definitely check her breathing. She might need a trilogy that will help her sleep better and breathe better. It is nice of you to do what you are doing. I had a full job, 4 kids, a husband that is a doctor and works very long hours and visited my sister every...

Mike outlined the things that you can do to help in a perfect way. I would add few things that helped with my sister: treat her normally and talk to her about normal life as if she was the friend you have known forever with no disease. My sister seeked compassion from the closest people...