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  • really would appreciate help from a patient reading this who understands. I feel helpless and don't want to wake up when this potentially will be all over and regret that I did the wrong thing.. that I didn't push past and force myself.. which instinctively I feel she truly does not want.
    would like to say hi. first post. very scared. my sister is becoming quite weak. diagnosed in 10.13; bulbar onset. would like to do whatever I can to support. wants to eat alone (understand). try to visit daily, hard to communicate.. feel helpless. she is my best friend.. my second mother ( 12 years older). feel guilty that I am not the one to have this. she has done everything right in life.. everything. epitome of health, right living. anyway... want to respect her space, her wishes, want to be with her.. just not understanding what she wants. seems she just wants to be alone.
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