Recent content by Siri

  1. Siri

    Siri's mom

    Hi everyone and I’m sorry I haven’t replied to all your messages although I greatly appreciate your thoughts, experiences and input. i continued as my mum’s full time caregiver. We never found a solution for her neck/neck collar unfortunately. She passed away last night after having been given...
  2. Siri

    My mother's ALS started in her tongue...

    Thank you for your reply Nikki, amd I'm so sorry for your loss. How long did she live with the diagnosis for? She refuses any respiratory aid and has no neck collar support, but she does have a feeding tube and has had it for 6 ish months now. It is somewhat of a new occurrence that she has no...
  3. Siri

    My mother's ALS started in her tongue...

    Greetings from Denmark everyone I'm brand new to the Forum, and I'm still unaware of many of the technical terms for ALS, so excuse my ignorance and possible lack of English expressions. I don't mean to offend anyone. My mother was diagnosed with sporadic ALS just about 2 years ago. She was 64...
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