Recent content by Silver Oak

Hi Kevin, Eric, Nikki and others, Merry Christmas! I'm looking forward to a New Year with hope As there were just rumors of some very positive ALS treatments in Japan, plus the new funding from our government. my speech is continuing to decline and I'm curious to know which "speech banking"...

Thank you for the feedback

I'm a new user on the forum and have only had ALS for almost one year. Right arm and hand shut down first, speech is slurred, left arm is getting weak. I'm working with Dr Namita Goyal at the UCI ALS Clinic in Orange, CA. Taking Riluzol 2x daily to slow progression. I have no idea what the...

I have a "Sleep Number" bed that is quite comfortable, although as my ALS progresses I'm having difficulty turning from one side to the other. Would be interested in solutions others have found.