Recent content by Sikesea

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    Saw my neuromuscular specialist today - new concern. Questions.

    I tried to ask but he looked downright uncomfortable, said to be sure to call in a week after the MRI. In March, he told me to tell work that I had myopathy because it was progressing and people were asking why I was limping and not taking the stairs. Plus, I had to have accommodations at work...
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    Saw my neuromuscular specialist today - new concern. Questions.

    I last posted here a couple of years ago. I am the person who had a long standing diagnosis of myopathy which had not progressed, unlike others in my family with MD then I developed fasiculations and was concerned. I had an emg which again showed myopathy and I left this forum. At that time, I...
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    Questions before neuro follow up on monday

    That wasn't much fun but got reasonably good news. Just myopathy. Thanks for the advice and listening to my concerns. All the best to you.
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    Questions before neuro follow up on monday

    Do you think pretreating with tramadol would be helpful for the EMG? I found the other one I had to be excrutiating. Or, could this screw up results in some way?
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    Questions before neuro follow up on monday

    Well, I misspelled it too but I blame auto correct! I will look into it but I know from the ATsDR registration that the incidence of ALS is higher in camp le jeune people. No idea if any other neuro disorders are higher.
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    Questions before neuro follow up on monday

    EMG tomorrow. Dang. That was fast. He's not sure what to say except that the symptoms don't match what my mom and aunt have and that the fasiculations are worrisome. My history of probable MD is throwing things off. He says MND is lower on the list than neuromyotonia. I am not exactly sure...
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    Questions before neuro follow up on monday

    Oh, I checked. Believe me! its an als center of excellence and the doc is neuromuscular boarded with a special interest in anterior horn cell disease. All I was trying to do was to prepare myself for what I think is going to be pretty bad news. I wasn't thrilled with the MD diagnosis but this...
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    Just wondering and scared

    I am just a lurker here until Monday so if I make people mad, I apologize. However, it is not possible to be using a Gower's maneuver to get off of the floor and not have "clinical" weakness. End of story. I stopped believing you right then. Quit harassing these people. And I AM a doctor. I...
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    Questions before neuro follow up on monday

    I suppose I was also asking if mnd seemed a possibility to people who would know about that. I was asking for questions that might not be obvious to ask.
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    Questions before neuro follow up on monday

    I am using my phone so I screwed up several important words. I have intermittent fasiculations just in the muscles with weakness and clasp knife rigidity. I had one EMG when I was 22 which was normal. I was sort of a guinea pig for the mda clinic who wanted to see if my brother or I had MD. It...
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    Questions before neuro follow up on monday

    i have a family history of limb girls muscular dystrophy. 10 years ago, I noticed isolated atrophy in one thigh muscle. I was told I probably had MD because of my mother and aunt's MD diagnoses. I did not follow through with neurology because my symptoms were stable and because there was no...
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