Recent content by Sidney

Thanks for the rational and perceptive response. I am definitely in what they call idiopathic territory. Everyone knows something neurological is going on but very good and I mean very good people don’t know what. It’s a trial and tough but I know and I’ve seen that it’s nowhere near as tough...

Oh no you are the last people I would want to upset. I am in diagnostic limbo and I sincerely apologise if I’ve upset anyone. I have sat in als clinics for 3 years now and I have seen the devastation it causes first hand. I will of course adhere to your wishes and not post but do please...

Hi and thanks but is +2 fibs and psw in lower legs not denervation?Neuro told me it was

Also forgot to add I have had two Emg's that show denervation in the form of psw and fibrillations in lower legs.Does anyone have a view on the abdominal problems please?

Er thank you. I’d be grateful for the opinion of one of the more established members who I’ve previously conversed with if possible he says politely

My latest symptom allied to everything else is abdominal pain after eating. Stomach gets bloated and hard ,making sleeping difficult. Since all this started I've had reflux but this is new and pretty painful. I've read that als slows down digestion and can cause this.I'm back to the Neuro in...

Thanks Nikki. Laughed out loud at the Zebras!. I think I’m the middle one. I don’t know exactly what’s going on but I think you ll be ok.Thanks for your time.

Hi Nikki Kind and as usual entirely sensible feedback. I know 'feeling ' isn't als but my legs feel weaker and tendons are stretched to breaking.Fasics have been constant. It also seems to be more prominent on the left side. The reasons for no als(so far) seem to be mainly clinical and also...

Hi. I realise I have posted a lot and asked a lot of questions so apologies. You have been so kind to answer. It is sincerely appreciated and I haven't been back for six months because I wanted to resist bothering you. I am however still in diagnostic limbo after 2 and a half years. I stated...

Thanks for taking the time Al. I am actually on the national health service here where incredibly the very best mnd doctors are free. I really don't question their motives at all.Theyre amazing. The fact you and others don't see Als is a huge comfort. I promise you I really really am not...

Many many thanks for your kind words. My heart sincerely goes out to you and your husband it really does. I have seen many als patients at clinics and you are the bravest of the brave. I am actually helping in a clinical trial which I hope may help edge towards making patients life easier. It's...

Good point Nikki. I will schedule another visit to ask questions. I think their reticence to commit is the progression issue.What freaks me is the' we cannot completely rule out mnd'. I am however at the best centre

Thanks Al. To be fair I don't ask for the appointments . They want to see me to see if there's progression.. I agree with your could be worse could be better assessment but this bloody limbo land isn't easy although I appreciate its a hell of a lot better than a definitive als diagnosis. Thanks...

So saw the Neuro with the following results of my EMG. Fasics in lower limbs were 2+. PSW 2+ in lower limbs including feet indicating ongoing denervation. Above knee level no psw or fibrillations.. No fibrillations anywhere. On Ncs were reduced sural nerve conduction in both feet. CMAP...

Thank you.I obviously I pray you're right and truly appreciate your time.I will if i may come back after my neuro appt in a few weeks and tell you the outcome. Thanks again Sid x.