Recent content by shrimpbox73

WOW ! Congrats you must be soooo proud.With all the terrible things going on it is times like this that you can forget and just enjoy the moment.

You Know I think you are such a sweet person.I suggest we go out to lunch and vent to each other! My only concern is we wont go home to our crazy lives!Call me,I think you need a break,I know I do.Hang in There. Kim

Dr.Charoltte Sumner is the best! My Husband was misdiagnosed for over a year.He had drop foot,which led to more weakness.I live in NJ and was told it might be CIDP.We drove to Hopkins and were treated so well.Our insurance refused to pay.So now we go to UPenn.Thank God Dr.Sumner still is aware...

Hi,my husband and I live on the Jersey Shore,about an hour and 15 min from you.I am not sure how your Dad lived,but my husband worked hard and volunteered his whole life .Raised a family and played by the book.A mans man.He is only 53 and has a fast moving monster within him.We are trying hard...

Andrea,I am so sorry to hear of your husbands passing .I feel I have just read the ending of a beautiful love story.My thoughts and prayers are with you.

I will sign petition as well. Jane Fonda,SHAME ON YOU !:mad:

FTD and ALS My husband was given the diagnosed of als and the added bonus of ftdementia.The doctor at the als clinic is sending us to a cognitive doctor on march17th.My husband has short term memory loss and although he understands what is happening part of him can't understand the what the...

Hi,hope you are hanging in there.Husband having a hard time 3 falls since I met you.Hope you and your husband are doing well.Kim

My Husband feels the same way.Such an active man.His progression has been swift as well.I feel for both you and your family.We have all been blindsided by this terrible disease.He also has everything in order ,wanting no tubes or vents.It is a very personal choice. He is 53 and can not walk and...

Lin,Nice meeting you at the meeting.It seems we have alot in common,Irish and our lives suck!! Hope to see you next month.I will give you my private e-mail and cell if you ever want to chat.KIM

I am going to the well spouse meeting at the Empire Diner on route 9 in Freehold.Hope to meet you in person! (Tues,7pm)

Netty,I read your post and feel like you were reading my mind.My husband was diagnosed last month but is figured to be at the 2year mark.The last 6mos have been the hardest.I want you to know you are not alone.I cry every morning.There are times I don't even want to go downstairs to start the...

Well Spouse meeting 7pm,Empire Diner route 9,Freehold.Looking forward to meeting you.Kim

My husband recieved a tetanus shot and Hep.A befor going down to help in Hurricane Katrina.A year later he twisted is ankle,drop foot ,now ALS and in a power wheel chair.Strong active man of 53,now can do nothing.I absolutlely believe it was the shots.

meeting Hi Lin.I am sorry I missed the meeting.My husband got the final diagnosed with frontotemporal dementia.I have been having some coverage issues as well as a tight schedule trying to fit Christmas shopping .I e-mailed Donna but I will be there next month.I am going to a caregiver meeting...