Recent content by shnakey.garg

could you please let me know which app you used on iPhone...

i have an iphone.. i will search for the app.. and try to use it to see how good it is...

ya.. i had also realized that this would be a very big factor to keep in mind.... i will search for this and see what suits the best...

Thanks.... i looked at their site and i am trying to understand which one will best suit my mom...

Hi All, I wanted to confirm that is there some kind of machine/instrument that can help Bulbar palsy patients who have (almost) lost their speech. Because to be affected with this disease and not able to express what are you feeling is really horrible. So i tries searching in on internet but...

Hi.. I am not sure.. but some where may be on this site itself.. i have read that Dex is available in some quantity in cough suryps... is it really true?

My mother is suffering from bulbar palsy. Patient outside US can also take part in it?

I really Appreciate HelenL and brooksea for their prompt responses. I think we will stay in india as she prefers being comfortable in familiar setting.I just hope the treatment for ALS is found ASAP. Currently my mother is on Rilutek 50 mg and Evion 400mg(Vitamin E). But i was searching ALS TDI...

I was afraid to hear to this answer. But i think every one has to face reality at some point. I guess this is my time now. As you said there is nothing so promising that you would want to take her elsewhere. Actually i have a valid working visa to USA, so earlier i was thinking of moving her to...

Hi All, My mother was diagnosed with Bulbar Palsy (ALS) in April 2011. She is advised Rilutek 50 mg and Evion 400mg(Antioxidant) twice a day. The Doctor told us that this is the only medicine available wordwide for this disease.The medicine wont treat her but it can delay the symptoms for few...