Recent content by shine81

Thank you for this information, lgelb. I will research it. Once I get more information from a doctor on my condition, I will post it here. Since my fasciculations are really becoming worse everyday in terms of how obvious and constant they are, I will nevertheless ask the neuro if he thinks...

Dear Karen, dear Laurie, Thank you for taking the time. You are really helping me. I am sorry Karen that you have slurred speech resulting from ALS and for both of you as cals or Pals might be going through. Obviously ALS is taking people's functionalities but it's never going to have a drop of...

Thanks! Could not find it...

Hello, and first of all, I wish you all the best you can all get for 2019 including love and peace in your souls. I posted here a few weeks ago, as I was concerned with a myriad of Symptomes including feeling of weakness in arm and one leg, beginning of fasciculations, a number of sensory...

Marie Laure, why do you want to know? Have you seen prof. MEININGER, too?

Thank you, Karen :) No, I'm not too panicked. I don't think I have ALS, I trust this doctor. But just not a 100% sure. I struggle to chase the bad thoughts when they come, and try to keep off the internet. Except this forum that I find helpful, and beautiful. If that's OK for the admins, I...

HP, I had not seen you message. I saw Prof. MEININGER.

Hello, just adding thzt the neurologue said that different options were on the table : radiculopathy, chronic fatigue Syndrom. But that was before I developed the speech and swallow problem.

So, here I am again. As promised, a report back from my appointment three weeks ago at the neuro, in France. It was a professor specialized in ALS, very empathic, very patient. He did what seemed to me a very thorough neuro examination, a lot of tap tap and strength tests everywhere, including...

I tried to post earlier and report back but apparently it did not work...

Thank you Nikki and all of you who took on their time and energy to help me. I will for sure report back on the third opinion and until then, will keep thinking about your kind and comforting words. Warmly, Shine

Report : well I entered in the doctor's office in tears, uncontrollable. So first thing he thought about was ok that one is crazy. I explained to him my symptoms, especially the dysphagia one that is very hard to explain. He performed reflexes tests on my legs and abdomen, and a few strengh...

Oh, I am so sorry again... I've never felt so desperate scared, and alone. My boyfriend is on a work trip and does not want to come back as he does not know at all what als is and don't even believe that if I had it would be a big deal. At this point, all you kind people are my best friends in...

Thank you so much for your answer. I wish so much that you are right. Either I'm going crazy either I'm right, but the more I read the more I am simply convinced that I have it. I always have been very rational and now fascic + weakness + paralysis in the bulbar area are just for me a Clear...

Thank you Laurie. I am being referred to the neurological emergencies today, because my "swallowing issues" I had mentioned in my original post turned out slowly into a paralysis of the pharynx and palate area. So scared. That, to me, sounds like als... Will report.