ShiftKicker

Thank you for your gentle correction. I certainly see your point. Please feel free to delete my post if you deem it to be in the slightest bit inappropriate.

Best regards,,

Tom

Hello,
Why are my responses in the DIHALS > Severe fasciculations, getting deleted?
Respectfully, jghallis

Your kindness I don't deserve and u are right I need to figure out how to pull myself together. Thank you you will be in my prayers. No longer will I troll this forum.

Was the emg done to early

Hi again why am I doing this to myself and you please accept my apologizes but once again I an finding myself locked in my head about this foot drop stuff. My question is this I had foot drop for a week when I had my emg on the needle part it says no spontaneous activity and on the muscle part its says normal in every box ia n. Fib none psw none fasc none HF none amp n dur n PPP n. Pattern none. On 4 muscles of the affected leg is this a clean emg then it states abnormal study there is electropyhisologic evidence of sever peroneal neuropathy likely across the fibular hear surgery is recommended. Your thoughts are so appreciated

Thank u for your kindness I had my appt with my neurosurgeon today. I have severe peroneal neuropathy and am scheduled for surgery Aug. 8. Absolutely no signs of als. I want to thank u and will pray with all my heart for u and all that have been diagnosed

Evening,
I hope you can guide me in the right direction, I really want to get on with life but something always brings me back on here and I feel ashamed that I still harass the good people on here.

10 weeks ago I had a normal EMG/NCS study as I was getting twitches and numbness, told it was BFS and try to curb my health anxiety. Two weeks ago my left arm started to twitch again and I felt numbness again, saw a Neurologist who said normal. Since yesterday I have had a intense twitching in my right bicep and forearm, could this be the anxiety kicking in? The twitching is constant when it wants to,I've had now 4 Neurologists who say not als, but these twitching really are scaring me.

Please guide me

Mark

Hi,
Can u please share contact info of that Facebook group admin. (that's what he asked in his recent post).
Thanks

Hello. I'm very sorry to be bothering you, but my psychiatrist appointment is tomorrow as I mentioned and I had another quick question before I go. Does my description of my speech issue (having trouble with "th" sounds, needing to repeat words occasionally to get them out right) sound at all like bulbar? And by the time bulbar was causing speech issues, would my neuro have seen fasciculations in the tongue already? I saw the neuro on Tuesday. I just want to clarify this specific issue so I can go to my psychiatrist appointment tomorrow well informed on the psychical side of things.

Hi again,

I put some of my doctors notes on my thread and was wondering if I can get someone's opinion on it or if someone has been down the same road. I really feel like I'm the only person with this issue and just need some support. I know my doctor is monitoring me and wants me to trust him but before he was saying it was just anxiety. Now this.. ughhh it's really annoying not knowing..

I'm truly sorry I didn't know that I was asking that one person i do apologize honestly I'm to sure how to really work the site but I will keep to my doctor and stay off the site I wish everyone on here the best and will pray for the suffers of als

Yeah its honestly no problem Fiona, I understand. I would PM you but I'm not able too. Just read your story, very interesting and like yourself I have also been an athlete my whole life training non stop 5 times a week (now can't) and also took L-Glutamine supplement which I immediately stopped taking after my symptoms appeared and I researched it and became worried. I obviously have no diagnosis yet so its difficult for me to comment on certain aspects as I don't know whats going to happen. I admire your courage and respect the fact you take time out to moderate the forum in your free time.

Take care

Hi Shiftkicker,

No worries. I did help care for my Nan when she had ALS though and have been a witness to the disease in full myself & remember every little detail she told me and what I witnessed from day 1. I also have been referred to an MND specialist & so I don't really think it's fair to categorise me with the people who have anxiety issues. I understand and respect the rules though & will stick to my own thread.

I personally haven't read your story yet but will make an effort too. All the best.

Jay

Hi Shiftkicker,

Did I do something wrong? apologies if so, was just trying to help out.

I have posted a lot because a lot of the answers we get from the neuros are not dead on. I have seen to many to continue looking for another and DR Pulley doesn't B.S. Imy just asking because I have never felt the tightness in my torso as I have for the last 3 weeks. I still have full range of motion but it becomes hard to sit or lay flat at times. I have sleep on my side in a fetus position..I know doctors are doctors but they don't live in our body or mind. They do a 40 minute physical and make a conclusion. I feel as if I don't walk in there with a drop foot or a disability then they can't give you an accurate diagnosis. Didn't you go though some of the same back and forth?