Recent content by Sherry Shipley

pretty depressing stuff.

No Problem-O. I saw it on the ALSTDI forum and my heart fluttered a bit. Reads to be quite encouraging, I have to say.

University of Illinois at Chicago Huntington's disease deciphered Researchers at the University of Illinois at Chicago College of Medicine have discovered how the mutated huntingtin gene acts on the nervous system to create the devastation of Huntington's disease. The report of their findings...

sorry about your brother. and I was just re-posting what BethU had posted. haven't read the actual article. but yes I believe that a positive attitude will go a long way.

BethU posted this a couple of weeks back: The May issue of MDA/ALS Newsmagazine has an article on "Factors in Survival." This is a quick synopsis ... (I wonder if they separated out bulbar onset from limb onset [see below] that might give a very different survival prognosis for limb onset...

with any of the MND researchers I've chatted with over email or read interviews with, it is usually the same thing - that stem cells will prove greatly beneficial in terms of pure research - but maybe not as a direct treatment itself... so stem cells still provide a great benefit to researching...

Wow. That's really sad. I was really hopeful for Stem Cell Research treating neurodegenerative diseases... some day soon...especially ALS. But Hopefully science provides a miracle... and soon!

thanks for the responses 8-)

a resounding YES. Okay. I thought so. here's my question, then... if you are able to reduce stress, does the progression also reduce... or once you've sped the disease process up, does it unfortunately continue that way? thanks a lot.

can massive amounts of stress speed up the progression of MND? Has this been shown? Curious.

you were diagnosed just last year...but you say how you've been dealing with this for a few years. how long before diagnosis did you notice symptoms? I'm just curious, because my son is symptomatic, but he seems to be progressing slowly too (hopefully he doesn't have this!) with whatever he has...

ha. I love that there is an article on factors influencing progression... it's just funny because when it comes to my Son, I've been told by a few doctors and a couple of PALS that it doesn't matter who the heck you are, rate of progression is totally unpredictable. WHAT A TRICKY FREAKIN' BUGGER...

I was talking specifically in relation to the ALSFRS, and how it works. But I see what you're saying.

Thanks, John1. Say one is diagnosed with ALS. Do you trace back from the time of diagnosis, or is it once you are diagnosed you trace back to the first time since onset of symptoms (it says "how many years since onset of symptons", so I'm assuming the latter). I'm only asking this in case my...

also my son hasn't been diagnosed with ALS. Just wanted to say that. He's going for his first nerve conduction in a few weeks. Neuro suspects he may have MND. I'm praying not. Neuro suggested the ALSFRS. He believes he scores a 32. Notices symptoms about 14 months ago.