Recent content by Shelleypatricia

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    Mom defeated the ALS monster.

    My hardest part has been that my dad seems totally fine and I have to learn to accept that he has not even started on his grief journey yet. He told me that he feels like mom is just away on holiday and will be back in a few days. It is rougher than I thought and I find that the anticipatory...
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    Mom defeated the ALS monster.

    I have gotten to know some very brave, strong and compassionate people in this journey that none of us should be on. I wish you well in your grief journey. Who knew grieving could be so physically painful. My dr said something to me that resonated with me and I could quote him with you in mind...
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    Mom defeated the ALS monster.

    Thank you for your kind words of support. They are very much appreciated, MaX
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    Mom defeated the ALS monster.

    My beautiful, strong Mom passed away at home with fourteen family members by her side. The ALS monster did not take her dignity or her spirit. She left this world surrounded by love. I have a very hard time accepting that she is no longer with us and struggle daily. She left on May 3rd at 10.24...
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    last stage

    I am fb Shelley Wautier ale I am not sure how to send a private message but i can message you with my phone number or e mail too.
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    last stage

    that helps more than you know Phil. My mum tries to eat but she really doesn't have much of an appetite. I believe I will contact the palliative care team on Monday and get them to come out. I know she doesn't have much of an appetite and has started sleeping more. It is such a comfort knowing...
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    I would love to connect with you. I am attending the first Support Group for the ALS society in...

    I would love to connect with you. I am attending the first Support Group for the ALS society in Abbotsford Today. Where do you live? thanks shelley
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    last stage

    thank you so much for all the kind words. We will have to meet the palliative team very soon. Your support is such a comfort at this sad time.
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    last stage

    Thanks Max, My mum is swallowing very little. only resource and thickened juice but she feels that somethings are just rolling around in her mouth and coming back out again. She is 79 and getting frail as we speak. We try to blend meals but she is not having the most success swallowing. I worry...
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    last stage

    My mum was diagnosed with ALS in September 2013, the bulbar kind. She has since refused a feeding tube and is currently around 75 lbs (from 130). She is wasting away before our eyes. I wonder how low can a person weight be before their organs shut down. I pray that she will just fall asleep and...
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    0200

  12. my mum

    my mum

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