Louise, I'm so very sorry for your loss, so very sorry! Like you and your JC, we knew something was wrong, but never dreamed it was ALS. John lived a little over 16 months after being diagnosed. I made videos of John and us...laughing...living! I'm so thankful I did.....I watch them...
I lost the love of my life, my Hubby, John, on June 5, 2017. ALS is a horrible disease...I pray for a cure one day soon....for all diseases. ALS did not beat John....John beat ALS....with his smile, his determination, his strive to live each and every day with joy, and not sorrow! Even his...
Jan 20, 2016 my Hubby was diagnosed with this horrible disease called ALS....through it all, he's never complained...not one word....he always says.."why complain, it is what it is...I can't change it". We've been blessed with so many great days..made each other laugh...instead of cry...and even...
Thank you all for the hugs, they are all very much appreciated....sending each and everyone of you all a hug!!! I pray for you all and thank you for your kind words....I'm here to, if anyone needs to talk!!!! Though I don't get on as often as I would like....I am praying for all.....GOD Bless...
Thank you, Deb.....his headaches are gone again....praying it stays that way! I'm learning to take a day at a time not looking down the road...just so very thankful for today!!!! How are you doing? Praying for you and your family!!!
Love and prayers,
Sheila
Hi Sue, John's Headaches are gone again....I don't know, but I feel it's because his neck is starting to droop again...he has a headmaster...he doesn't like it....but uses it at times!! He tries to relax his head/neck against the recliner!!!
Thank you for asking!!! How are you doing...
When my Hubby, John, was diagnosed in Jan of this year he was having so many issues....breathing, neck drooping, no muscle in his left hand and arm, so weak couldn't hardly walk, he can't lay down...sleeps in a recliner chair do to his breathing.....was in a wheelchair by May...in a motorized...
Thank you, Joan....I'll call in the morning! Thank you so very much for your prayers! You and your family are always in my thoughts and prayers!!!
Love and prayers,
Sheila
I just have a few questions....I hope someone can help me. John, my Hubby.....was diagnosed Jan this yr.....it started fast....from walker to wheelchair in February.....to motorized chair now......his Trilogy machine since January, has been a life saver. John was having severe headaches and...