Recent content by Sheen

My sincere condolences on the passing of your husband. May he rest in peace and god provide you with the courage to live without him.

Thank you all for your kind words and support. Sheena

Thank you Dorothy , i posted it.

My beloved mother Seema lost her battle with ALS and Frontotemporal Dementia on Sept. 8, 2012 left us for her heavenly abode. Her suffering is over and our suffering continues as we desperately try to fill the void she has left behind in our hearts with her sweet memories and her lovely smiling...

Thank you Ms. Pie

Thank you for your kind words Kimberly. I could not find the memorium section.

My beloved mother Seema lost her battle with ALS and Frontotemporal Dementia on Sept. 8, 2012 left us for her heavenly abode. Her suffering is over and our suffering continues as we desperately try to fill the void she has left behind in our hearts with her sweet memories and her lovely smiling...

Hi Katie: My mother has PBP and Primary progressive Aphasia both diagnosed in 2009 but symptoms started with loss of ability to speak in June 2008It has been very very had for me to see my mother suffer like this. She now has a peg tube and cannot communicate at all. PPA is a form of FTD that...

Hi : I am in the same position as you. My mother just got a Peg tube in on April 30, 2010 and for the first few days she was literally crying with pain. The doctor checked it out and said it was healing fine and he did not understand the reason for the pain. She is struggling with the tube and...

Hello All: It's been awhile since I last posted anything. My mother is developing signs of FTD as well as struggling with PBP. The hypersalivation was a huge issue and I want to thank Rachel who suggested Methscopolamine Bromide 2.5 mg taken three times a day , as it seems to be working on my...

I recently tried Methscopolamine Bromide 2.5 mg taken three times a day , half hour before meals. The generic name is Methscopolomine Bromide and the Brand name is Pamine. My mother has taken it for 5 days now and it seems to be helping her. She has triend Botox and other stuff before and this...

sorry for my ignorance, but what is special about a vitamix blender compared to other blenders and why is the price so high? I am thinking of buying one for my mother who will have a peg soon.

Hi Joel: Can you tell me how you gave yourself IV infusions? What doesage does Glutathione come in? Where did you put the IV line? My mother has bulbar onset ALS and I would like to try everything I can to help her to stop the progression. Thanks, Sheen

I have started my mother on Lithium Orotate which is a supplement so we don't have to draw blood all the time to check levels. she is taking 3 pills 2 times a day. Nothing has changed because of it. It is supposed to have a neuroprotective effect so I am keeping her on it. Always hoping that it...

Thank you Mike. I was wondering if your wife tried Glycopyrulate ( Robinul) for drying up the saliva? I am getting desperate as I can't bear to see my mother struggling with the saliva issue. Botox did not work. She is not drooling as she is very good about cleaning her mouth but it keeps her...