Recent content by shaunas mom

My daughter is concerned about when breathing is affected and wearing a mask on her face. She often yells for me to reposition her get a drink etc.she also gets claustrophobic. She says because of this she cant wear anything over her mouth or strapping her chin. She is refusing a vent for later...

Thanks for all the thoughts, who would ever think you would watch your child go thru this terrible disease. She is only 36 yrs. old.

I am new to this forum. I have seen a lot of useful information shared by everyone that I appreciate greatly. My daughter was diagnosed with MS in March of 2011 and then ALS in October of 2011. they say she has both diseases. She is a very strong person and fights this disease everyday, partly...